Dealing with Fibromyalgia and taking care of your spouse who has Myelofibrosis can be complicated, but taking things one day at a time; one moment at a time, is the best approach. Seven years ago my husband was diagnosed with MDS-Myelodysplastic Syndrome. Four years into that, a bone marrow biopsy changed the diagnosis to include MF-Myelofibrosis.… Continue reading Myelofibrosis and Fibromyalgia
Tag: Fibromyalgia
Fibromyalgia is a chronic invisible illness.
Still Alive
I pretty much shelved this blog due to all the Covid19 goings-on. The drama online was enough to keep me from the internet. Nothing has been positive and all seems to be gloom and doom, political and demeaning. So here I sit, many wondering if I am still alive and kicking... Alive, yes. Kicking...well, if… Continue reading Still Alive
Just a Blog About Fibro
Today I am just writing a blog about living with Fibromyalgia. What does that mean? It means that I am just a normal person whose life has ups and down same as anyone. Sad days, happy days. Emotional days and steady days. I am just your average Jolene who has a life she is trying… Continue reading Just a Blog About Fibro
Fibromyalgia Zombie
Today I am zombified. Is that a word? Well, when you have Fibromyalgia, it should be a word. My definition of zombified is when you wake up and suddenly realize your body and mind don't work. You feel intense pain in all your joints, down your spine...everywhere, kinda like the immediate onset of influenza! Your… Continue reading Fibromyalgia Zombie
Fibromyalgia and Brain Fog
When you have Fibromyalgia and your brain does not cooperate with what you need to get done, it makes getting through the day quite the challenge! This morning I set out to check off my list of " things-to-do-today" as I did them. However, I had numerous interruptions; ie, the internet man showed up earlier… Continue reading Fibromyalgia and Brain Fog
Loving Someone with Cancer When You Have Fibromyalgia
My husband has cancer of the bone marrow called Myelofibrosis. He has been receiving blood transfusions for over a year. He was receiving them about every 14-16 days until this past winter when his body began requiring them about every 9-12 days; 2 units each time. As a Fibromyalgia sufferer, I deal with the ups… Continue reading Loving Someone with Cancer When You Have Fibromyalgia
Living in the Midwest with Fibromyalgia
I suffer from Fibromyalgia. I have multiple days in a row where I seem to have more energy and I also have trouble sleeping. Then, I have found the opposite to be true; days in succession where I am so fatigued I can barely function. Whether I have energy or am fatigued, every single day… Continue reading Living in the Midwest with Fibromyalgia
My Crazy, Zany Life
This Momma struggles to find her way through autumn days while suffering from Fibromyalgia
Being Creative with Fibromyalgia
Having Fibromyalgia and being creative, like decorating a cake, is quite the challenge! Today after our family Bible study and prayer time it was decided to spontaneously celebrate our daughter's birthday, which is actually next weekend, but due to a music engagement we have way upstate, we will not be able to celebrate it on… Continue reading Being Creative with Fibromyalgia
Is Fibromyalgia Progressive?
This month marks the 3-year anniversary of my diagnosis with Fibromyalgia. I wish I could say that the past 3 years I have stayed the way I was at my diagnosis. However, my experience has led me to conclude that Fibromyalgia is a progressive condition. When I was first diagnosed, my pain levels were at… Continue reading Is Fibromyalgia Progressive?
Fibromyalgia and Driving
Fibromyalgia and driving don't go hand-in-hand, at least for me. My experiences have always been less than agreeable. Even going shopping or to the city for a doctor's appointment, wreak havoc on my body. Yesterday, I had to drive over an hour to take one if my sons to a doctor's appointment in the city.… Continue reading Fibromyalgia and Driving
Fibromyalgia and Extreme Weather Changes Don’t Mix
What is a major FIBRO day? Well, today is, of course! Why? Because today's episode is due to a change in the weather. Rain, wind, and storms make for a very blustery fall day and it is what I awoke to today. I knew what type of weather it was before my eyes opened. The… Continue reading Fibromyalgia and Extreme Weather Changes Don’t Mix
Ripe Peaches and a Fibro Day
Yesterday we drove just over 1.5 hours away to play music at a nursing home. As always, it was great fun meeting the residents and playing music! Then we all stopped at our favorite place-Cracker Barrel- for dinner. Does anyone NOT like that place? Seriously, it is the best! (Just saying!) Afterward, we headed farther… Continue reading Ripe Peaches and a Fibro Day
