{"id":131,"date":"2017-06-15T22:45:13","date_gmt":"2017-06-15T22:45:13","guid":{"rendered":"https:\/\/thepersistentbutterfly.com\/?p=131"},"modified":"2017-07-24T20:53:48","modified_gmt":"2017-07-24T20:53:48","slug":"where-does-the-time-go","status":"publish","type":"post","link":"https:\/\/thefibro-lupusbutterfly.com\/?p=131","title":{"rendered":"Doing daily tasks when you hurt"},"content":{"rendered":"<p>Today I hurt. This is not unusual since I have Fibromyalgia. I spent the past seven days living my life as wife and mother. With Fibro it is not as easy as it used to be *sigh*.<\/p>\n<p>Last weekend, I made and decorated a cake for our son&#8217;s high school graduation party. After &#8220;writing&#8221; Congratulations with the icing bag, I thought my hand was going to never stop throbbing and would permanently stay in the fist-like position. I continued on with his name, only the letters were not as smooth as I used to write over the past twenty years of cake decorating! My hand shook uncontrollably and my eyes held back the tears of pain. I was determined to do this for my son as I have for every birthday he&#8217;s been alive to witness!! The letters now looked like zig-zag letters, Oh, well, I did try. These hands of mine would not cooperate!! Well, by this time, my hips, shoulders, back and elbows were screaming at me! I left the mess to be cleaned up by the graduate himself and slowly paddled my way down the hall. I was on a mission to find my daughter because I was in need of assistance with the shower!!! (My body was boldly proclaiming HOT WATER!)! I could not even unfasten my, uh&#8230;bra&#8230;YEP, I was in pretty bad shape! Wonderful daughter to the rescue! One might ask why did I not ask my husband?? Well, his left hand is still recovering from his wrist surgery (T-plate and seven screws) and he can scarcely button his own shirt, let alone help me.<\/p>\n<p>Okay, so into the shower I went, fisted hand and all. We won&#8217;t talk about how I got dressed&#8230;<br \/>\nGraduation weekend was now over (cake was delicious and a success, or so I was told&#8230;) and the coming week looked L-O-N-G. I do try to rest, but life has a way of not letting you do that, haha- Piano lessons, dealing with the insurance guy from the car accident our other daughter was in, fighting off the migraine from the weekend on Monday&#8230;and again on Tuesday, succumbing to the pain in a frenzy of feeling the Ibuprofen fight with the head and joint pain&#8230;(which, for me is often worse) and sleeping it off hoping to wake up to it GONE.<\/p>\n<p>Okay, back to everything life was doing while I was stalled out&#8230;music practice, watering the garden, oh, and of course, COOKING meals, doing LAUNDRY and taking a day to go shopping with my oldest daughter for fabric for the baby&#8217;s room&#8230; (and did I mention I will be assisting in the sewing of the bumper pads and curtains???) Sidebar: Now, I do love to sew, I am actually quite creative, but sewing does not like me anymore. My daughter knows this and now I have 5 months to work on it little by little. Good thing since the whole &#8220;push til you drop&#8221; philosophy just does not work for me anymore. It is our first grandchild after all, and I want to do this!!! End of sidebar.<br \/>\nAnd, to top it off I ended my week at the wonderful &#8220;stay in the system&#8221; checkup at your friendly neighborhood doctor&#8217;s office. I seriously feel hypochondriatic when I am at these blessed appointments. Nothing like speaking out-loud what you don&#8217;t even like to think about. *another sigh*&#8230;and then, More blood work. It seems like I am destined for continual pain. Life keeps going, we must go with the life. It is the current we are swept into&#8230;But I will try to go slower&#8230;.I&#8230;.will&#8230;.try&#8230;.<\/p>\n ","protected":false},"excerpt":{"rendered":"<p>Today I hurt. This is not unusual since I have Fibromyalgia. I spent the past seven days living my life as wife and mother. With Fibro it is not as easy as it used to be *sigh*. Last weekend, I made and decorated a cake for our son&#8217;s high school graduation party. After &#8220;writing&#8221; Congratulations&hellip; <a href=\"https:\/\/thefibro-lupusbutterfly.com\/?p=131\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">Doing daily tasks when you hurt<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"ngg_post_thumbnail":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[18],"tags":[19],"class_list":["post-131","post","type-post","status-publish","format-standard","hentry","category-living-daily-with-fibromyalgia","tag-fibro-fog","without-featured-image"],"aioseo_notices":[],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/ph40Aj-27","jetpack-related-posts":[{"id":1814,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1814","url_meta":{"origin":131,"position":0},"title":"May is Lupus and Fibromyalgia Awareness Month","author":"Fibro Momma of 10","date":"May 1, 2026","format":false,"excerpt":"Yes, the month of May is Lupus and Fibromyalgia Awareness Month. Can you believe it is already May?? So, if April showers bring May flowers, then May flowers come in the form of awareness ofthese cruel conditions! I hope you all have to opportunity to speak about how Lupus and\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20260501_064917_Facebook-scaled-e1777650527197.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20260501_064917_Facebook-scaled-e1777650527197.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20260501_064917_Facebook-scaled-e1777650527197.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20260501_064917_Facebook-scaled-e1777650527197.jpg?resize=700%2C400&ssl=1 2x"},"classes":[]},{"id":1756,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1756","url_meta":{"origin":131,"position":1},"title":"Recovering from a Routine Change is Rough when you have Fibromyalgia and\/or Lupus","author":"Fibro Momma of 10","date":"April 29, 2026","format":false,"excerpt":"Keeping a routine is crucial when you suffer from Lupus and Fibromyalgia. It can take days to recover from a routine change when you have Fibromyalgia and\/or Lupus. When your routine changes, the pain levels soar, energy levels decrease and cognitive issues begin. The first clue my body gives me\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/20260429_100334-480x640.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1648,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1648","url_meta":{"origin":131,"position":2},"title":"Frustration with Fibromyalgia and Lupus","author":"Fibro Momma of 10","date":"March 26, 2026","format":false,"excerpt":"I am beyond frustrated about chronic pain.\u00a0 \u00a0 I never know what a day will bring forth... here is an example of my week so far... This past Monday, I had a horrible pain day.\u00a0 I could barely move, my brain wasn't working well and I had what I call\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/03\/20260326_092321-480x640.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1840,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1840","url_meta":{"origin":131,"position":3},"title":"A Husband&#8217;s View of Lupus and Fibromyalgia","author":"Fibro Momma of 10","date":"May 8, 2026","format":false,"excerpt":"In honor of National\u00a0Lupus Awareness Day (May 10th) and National Fibromyalgia Awareness Day (May 12th), my hubby wrote a few words to share with other husbands who are wanting to help their wives who are battling Fibromyalgia and\/or Lupus. \"As a husband living with a Fibro\/Lupus sufferer, it can be\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=700%2C400&ssl=1 2x"},"classes":[]},{"id":1632,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1632","url_meta":{"origin":131,"position":4},"title":"What I do today will Affect My Pain Level Tomorrow","author":"Fibro Momma of 10","date":"February 19, 2026","format":false,"excerpt":"The pain I experience today may not be the same pain I have tomorrow, or what I had yesterday.\u00a0 Depending on what I do will depend on how my pain will be. The funny part of this (sarcasm) is that even if I spent the day resting, it still causes\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":1862,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1862","url_meta":{"origin":131,"position":5},"title":"Spinal Issues and Fibro and Lupus","author":"Fibro Momma of 10","date":"May 14, 2026","format":false,"excerpt":"Lately my spine has felt more on fire than usual. It hurts to turn my head, lift my arms, and walk. I cannot get comfy sleeping, either. I have trouble reaching up or down without discomfort and I am keenly aware of the pain all day. 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