{"id":1364,"date":"2020-02-25T01:25:16","date_gmt":"2020-02-24T21:55:16","guid":{"rendered":"https:\/\/thefibro-lupusbutterfly.com\/2020\/02\/25\/advice-about-fibromyalgia\/"},"modified":"2020-02-25T01:32:04","modified_gmt":"2020-02-24T22:02:04","slug":"advice-about-fibromyalgia","status":"publish","type":"post","link":"https:\/\/thefibro-lupusbutterfly.com\/?p=1364","title":{"rendered":"Advice You Dont Want About Fibromyalgia"},"content":{"rendered":"<p><h1><strong>Don&#8217;t you hate it when people who don&#8217;t know how you really feel offer you advice on how to feel better? Or worse, they tell you everything they think you are doing wrong and how they think you should fix it&#8230;then you would not hurt so bad physically?<\/strong><\/h1><\/p> <p><h3>If you suffer from any type of chronic pain condition and this has happened to you, you know how frustrating it can be. I am a Fibromyalgia sufferer and warrior. I fight the pain every day. When I fall into a flare, the shadow it casts is a seemingly neverending tunnel of pain.<\/h3><\/p><h3> <\/h3><p><h3>I have been in a Fibro-flare for almost a week now. I do not know what caused it, but here it is to grace my body with various pains in all my joints and everywhere in between, 24\/7, even waking me up at night.<\/h3><\/p><h3> <\/h3><p><h3>I know at some point the flare will cease, but until then, I keep on going. I push myself to get going in the morning because I don&#8217;t like giving in to the pain, even though my body is screaming at me to rest. Rest can have a negative effect in that getting up again is like starting the whole day over and the pain will seem more intensified. Sometimes stopping to rest hurts worse than keeping going.<\/h3><\/p><h3> <\/h3><p><h3>Today is a rainy, dreary day, which has only made the pain worse. I have been moving very slow today, reading my Bible and making a pot of chicken noodle soup. My head feels like it may explode, but so far, so good.<\/h3><\/p><h3> <\/h3><p><h3>Emotions are a trigger for me, too. I do my best to keep them in check, until that blessed person starts in on the&#8230;you wouldn&#8217;t feel like you do if&#8230;if&#8230;if&#8230;Spoken by a person who has NO IDEA what it is like to have FIBROMYALGIA.<\/h3><\/p> <p><h1><em>So, I do my best to avoid such people. <\/em><\/h1><\/p><p><h3>I have had this condition for over six years and I have learned how to live with it and live thorough it. I have not arrived, mind you. But I am managing well and with what works for me. Those that try to upset my apple cart are those I try to avoid.<\/h3><\/p><h3> <\/h3><p><h3>I hope you have learned to walk away from those who offer their prepackaged help and not allow it to upset you.<\/h3><\/p><h3> <\/h3><p><h3>I pray you are making it through your day, no matter what the weather is like in your neck of the woods.<\/h3><\/p><h3> <\/h3><p><h3><em>To those in a Fibro-flare, my prayer is for peace over your world and peace within yourself to handle it. May the Lord grant you that today.<\/em><\/h3><\/p><h3> <\/h3><p><h3>God Bless- The Fibro Momma of Ten<\/h3><\/p> ","protected":false},"excerpt":{"rendered":"<p>Don&#8217;t you hate it when people who don&#8217;t know how you really feel offer you advice on how to feel better? Or worse, they tell you everything they think you are doing wrong and how they think you should fix it&#8230;then you would not hurt so bad physically? If you suffer from any type of&hellip; <a href=\"https:\/\/thefibro-lupusbutterfly.com\/?p=1364\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">Advice You Dont Want About Fibromyalgia<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"ngg_post_thumbnail":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-1364","post","type-post","status-publish","format-standard","hentry","category-uncategorized","without-featured-image"],"aioseo_notices":[],"aioseo_head":"\n\t\t<!-- All in One SEO 4.9.8 - aioseo.com -->\n\t<meta name=\"description\" content=\"Don&#039;t you hate it when people who don&#039;t know how you really feel offer you advice on how to feel better? 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It can take days to recover from a routine change when you have Fibromyalgia and\/or Lupus. When your routine changes, the pain levels soar, energy levels decrease and cognitive issues begin. The first clue my body gives me\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/20260429_100334-480x640.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":612,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=612","url_meta":{"origin":1364,"position":1},"title":"Fibromyalgia and the Guilt Complex","author":"fibropage1","date":"September 23, 2017","format":false,"excerpt":"You may have read on other blogs about how some people with Fibromyalgia lovingly tell friends and family that they cannot attend an event or host a gathering and bow-out \"gracefully.\" In this post I we will speak about the realities of the guilt involved by doing this and its\u2026","rel":"","context":"In &quot;Fibromyalgia Family Life&quot;","block_context":{"text":"Fibromyalgia Family Life","link":"https:\/\/thefibro-lupusbutterfly.com\/?cat=21"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2017\/08\/3546ea813f79a4b657ac2cb8ad1ff0c7-fibromyalgia-quotes-chronic-illness.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1682,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1682","url_meta":{"origin":1364,"position":2},"title":"Feeling run-over, but with no regrets","author":"Fibro Momma of 10","date":"April 9, 2026","format":false,"excerpt":"Yesterday I did a thing and today I feel the affects of it. Did I know when I set out to drive 1.5 hours (each way) to visit my grandkiddos yesterday that I would feel completely run over today?\u00a0 \u00a0 Well, yes and no.\u00a0 Yes, because ever since Fibromyalgia entered\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/Screenshot_20250519_063915_Chrome.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1632,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1632","url_meta":{"origin":1364,"position":3},"title":"What I do today will Affect My Pain Level Tomorrow","author":"Fibro Momma of 10","date":"February 19, 2026","format":false,"excerpt":"The pain I experience today may not be the same pain I have tomorrow, or what I had yesterday.\u00a0 Depending on what I do will depend on how my pain will be. The funny part of this (sarcasm) is that even if I spent the day resting, it still causes\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":1706,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1706","url_meta":{"origin":1364,"position":4},"title":"Proud While In Pain","author":"Fibro Momma of 10","date":"April 14, 2026","format":false,"excerpt":"I do my best not to dwell on my pain. Some days are easier than others. I have dealt with Fibromyalgia and Lupus for over a decade and pretty much know what affects me. Some days, though, are a beast! 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