{"id":1501,"date":"2025-06-18T18:08:58","date_gmt":"2025-06-18T14:38:58","guid":{"rendered":"https:\/\/thefibro-lupusbutterfly.com\/?p=1501"},"modified":"2025-06-18T18:09:01","modified_gmt":"2025-06-18T14:39:01","slug":"what-to-say","status":"publish","type":"post","link":"https:\/\/thefibro-lupusbutterfly.com\/?p=1501","title":{"rendered":"What to Say"},"content":{"rendered":"\n<p>Recently my husband asked me how I was feeling.\u00a0<\/p>\n<p>I responded with &#8220;That&#8217;s a loaded question because I don&#8217;t want to come across as always complaining.&#8221;<\/p>\n<p>He smiled a knowing smile of &#8220;trying to understand.&#8221;\u00a0<\/p>\n<p>Then said, &#8220;Maybe you could come up with a phrase that would tell me how you feel.\u00a0 For example,\u00a0 &#8216;I&#8217;m fine&#8217; might mean you feel run over, broken or hurting. If you say &#8216;I&#8217;m okay&#8217; it might mean &#8216;today isn&#8217;t as bad&#8217; &#8221;\u00a0<\/p>\n<p>So, I have been pondering what he said in trying to figure out responses that are positive, but would also relay to him how I&#8217;m really feeling.<\/p>\n<p>When you are in the middle of a pain flare, being positive is not the first thing that comes to mind. We have to practice that.<\/p>\n<h2>It&#8217;s not really lying about how you feel, it&#8217;s trying to be optimistic.<\/h2>\n<p>We battle ourselves each day. Our mind can suffer; being optimistic is a learned trait.\u00a0<\/p>\n<p>It can be very difficult to be optimistic when your joints literally feel like they are dangling by a thread and it&#8217;s all you can do to sit down or pick up a cup of tea.<\/p>\n<p>So, the next time he asks how I am doing, and I say &#8220;I&#8217;m fine,&#8221; he will know what that means&#8230;<\/p>\n<p>Because God knows how we feel no matter what we say&#8230;or don&#8217;t say. We are all broken and in need of a savior.\u00a0<\/p>\n<p>The beginning of the song and chorus, <a href=\"https:\/\/youtu.be\/1OLGUW1VHLY?si=QJNPWoEO23bg16Wn\"><em>Truth Be Told<\/em> <\/a>by Matthew West speaks volumes&#8230;<\/p>\n<p>Here are the beginning lyrics:<\/p>\n<p>&#8220;Lie number one, you&#8217;re supposed to have it all together&#8230;And when they ask how you&#8217;re doing, just smile and tell &#8217;em, &#8220;Never better&#8221;&#8230;<\/p>\n<p>Lie number two, everybody&#8217;s life is perfect except yours&#8230;.So keep your messes and your wounds and your secrets safe with you behind closed doors&#8230;<\/p>\n<p>Truth be told, the truth is rarely told&#8230;I say, &#8220;I&#8217;m fine, yeah, I&#8217;m fine, oh, I&#8217;m fine, hey, I&#8217;m fin\u0435&#8221;<\/p>\n<p>But I&#8217;m not, I&#8217;m broken.<\/p>\n<p>And when it&#8217;s out of control, I say it&#8217;s under control&#8230;But it&#8217;s not &#8230;.and You know it<\/p>\n<p>I don&#8217;t know why it&#8217;s so hard to admit it-Wh\u0435n being honest is the only way to fix it-There&#8217;s no failure, no fall, there&#8217;s no sin You don&#8217;t already know&#8230;So let the truth be told.&#8221;<\/p>\n<p>\u00a0<\/p>\n<p>Tell Jesus how you feel. Rant, rave, let it out so when your loved asks, and you say &#8220;I&#8217;m fine&#8221; they will know what you mean and the truth will be told.\u00a0\u00a0<\/p>\n<p>Blessings-<\/p>\n<p>~The Fibro Momma of Ten<\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>\n\n\n ","protected":false},"excerpt":{"rendered":"<p>Recently my husband asked me how I was feeling.\u00a0 I responded with &#8220;That&#8217;s a loaded question because I don&#8217;t want to come across as always complaining.&#8221; He smiled a knowing smile of &#8220;trying to understand.&#8221;\u00a0 Then said, &#8220;Maybe you could come up with a phrase that would tell me how you feel.\u00a0 For example,\u00a0 &#8216;I&#8217;m&hellip; <a href=\"https:\/\/thefibro-lupusbutterfly.com\/?p=1501\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">What to Say<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"ngg_post_thumbnail":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-1501","post","type-post","status-publish","format-standard","hentry","category-uncategorized","without-featured-image"],"aioseo_notices":[],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/ph40Aj-od","jetpack-related-posts":[{"id":1682,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1682","url_meta":{"origin":1501,"position":0},"title":"Feeling run-over, but with no regrets","author":"Fibro Momma of 10","date":"April 9, 2026","format":false,"excerpt":"Yesterday I did a thing and today I feel the affects of it. Did I know when I set out to drive 1.5 hours (each way) to visit my grandkiddos yesterday that I would feel completely run over today?\u00a0 \u00a0 Well, yes and no.\u00a0 Yes, because ever since Fibromyalgia entered\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/Screenshot_20250519_063915_Chrome.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":612,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=612","url_meta":{"origin":1501,"position":1},"title":"Fibromyalgia and the Guilt Complex","author":"fibropage1","date":"September 23, 2017","format":false,"excerpt":"You may have read on other blogs about how some people with Fibromyalgia lovingly tell friends and family that they cannot attend an event or host a gathering and bow-out \"gracefully.\" In this post I we will speak about the realities of the guilt involved by doing this and its\u2026","rel":"","context":"In &quot;Fibromyalgia Family Life&quot;","block_context":{"text":"Fibromyalgia Family Life","link":"https:\/\/thefibro-lupusbutterfly.com\/?cat=21"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2017\/08\/3546ea813f79a4b657ac2cb8ad1ff0c7-fibromyalgia-quotes-chronic-illness.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1871,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1871","url_meta":{"origin":1501,"position":2},"title":"Being Your Own Advocate for Lupus","author":"Fibro Momma of 10","date":"May 26, 2026","format":false,"excerpt":"So, you start your list for your next encounter with your doctor, trying to be your own advocate for your health.\u00a0\u00a0 You write your symptoms, which makes you look like a hypochondriac. You write how difficult it is to get moving each day. How the \"tin-man syndrome \" lasts for\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":1636,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1636","url_meta":{"origin":1501,"position":3},"title":"Rainy Days, Baking and Fibromyalgia","author":"Fibro Momma of 10","date":"March 3, 2026","format":false,"excerpt":"Today I awoke to rain. And not just a little rain, but a continual dropping. The forecast says it is to rain non-stop here in the Midwest for the next 10 days and that means nasty pain for Fibro and Lupus sufferers.\u00a0 It is hard for me to manage pain\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/03\/20250212_091455.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1652,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1652","url_meta":{"origin":1501,"position":4},"title":"Being Scared of Living with Chronic Pain","author":"Fibro Momma of 10","date":"March 29, 2026","format":false,"excerpt":"I'm scared.\u00a0 Not scared that someone will harm me. Not scared of dying (because I gave my life to Jesus and I know He has saved me and I will go to heaven). Not scared of animals. Not scared of anything like that.\u00a0 I'm scared of what I do today\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2018\/05\/074eb5cef9d8b21fc087abf492936955-fibromyalgia-pain-chronic-pain-480x561.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1840,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1840","url_meta":{"origin":1501,"position":5},"title":"A Husband&#8217;s View of Lupus and Fibromyalgia","author":"Fibro Momma of 10","date":"May 8, 2026","format":false,"excerpt":"In honor of National\u00a0Lupus Awareness Day (May 10th) and National Fibromyalgia Awareness Day (May 12th), my hubby wrote a few words to share with other husbands who are wanting to help their wives who are battling Fibromyalgia and\/or Lupus. \"As a husband living with a Fibro\/Lupus sufferer, it can be\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=700%2C400&ssl=1 2x"},"classes":[]}],"jetpack_likes_enabled":true,"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/posts\/1501","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1501"}],"version-history":[{"count":0,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/posts\/1501\/revisions"}],"wp:attachment":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1501"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1501"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1501"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}