{"id":153,"date":"2017-07-05T08:46:55","date_gmt":"2017-07-05T08:46:55","guid":{"rendered":"https:\/\/thepersistentbutterfly.com\/?p=153"},"modified":"2017-07-24T20:41:23","modified_gmt":"2017-07-24T20:41:23","slug":"fibromyalgia-frustration","status":"publish","type":"post","link":"https:\/\/thefibro-lupusbutterfly.com\/?p=153","title":{"rendered":"Fibromyalgia  Frustration"},"content":{"rendered":"<p>What is my biggest frustration?? Well, it would be choosing how to use what energy I have to complete the things that need to be done in a day.\u00a0Especially when there are so many things that need to be done. \u00a0If I break these down to the bare necessities then I am faced with the challenge of the evening meal. Do I start dinner this morning? Do I put dinner off until this afternoon hoping that I can still make it or will it become a quick meal like sandwiches because my body quit on me before I was ready? Well, my husband deserves better than a sandwich for his Hard Day&#8217;s Work and therefore if I choose to start dinner in the morning then that means I cannot lesson plan. (I am a homeschooling mother and summer is my lesson plan time). I have to choose how my energy is better spent. I have to decide what to make for dinner.<\/p>\n<p>Now, I have two whole chickens sitting in the refrigerator. I can season them up, toss them in a crock pot and walk away and then this afternoon make some rice and vegetables and call it good. However, baked chicken is not my husband&#8217;s favorite thing. Okay, so do I cook down the chickens all day and make a nice broth and thicken that and boil some pasta and make creamy chicken and noodles? That will work except that I will have to de-bone the chicken after it&#8217;s cooked and I don&#8217;t know how I&#8217;m going to be feeling when that time comes to de-bone it. So then I think maybe I&#8217;ll just make individual chicken pot pies! But then, the cloud befalls my mind when I think of all the work involved in that and will I feel like I&#8217;m able to do that this afternoon????<\/p>\n<p>So now I&#8217;m back to the baked chicken as it will still put out a nice meal for my family and cause me the least effort and hope my husband will still smile while he eats it. This might sound like a random problem&#8230;or not even a problem at all, \u00a0but for those who suffer with Fibromyalgia you know exactly what it is that I&#8217;m dealing with. I have always been a planner. \u00a0I would plan a day to time, then a week at a time, a month at a time, and even a quarter of the year at a time. \u00a0I had short-term goals and I had long-term goals. \u00a0My family is large. I home-school. \u00a0I have to do these things. But now I am literally to the tentative daily plan and &#8220;hope&#8221; \u00a0that I can accomplish what I need to do in a given day.<\/p>\n<p>Today I am coming off of the 4th of July holiday. \u00a0It is also storming. \u00a0Needless to say, I cancelled my PT appointment for this morning. \u00a0Both the holiday and the weather are an unfortunate factor for me in getting through a day. \u00a0So here I sit, writing this down. \u00a0My immediate goal is what to make for dinner and do I use my energy on that or the lesson plans that I&#8217;m supposed to be spending my day working on? The frustrations of Fibromyalgia, \u00a0there are no words. \u00a0Well, there are words&#8230; But we won&#8217;t use those here. Now, where did I say those chickens were???<\/p>\n ","protected":false},"excerpt":{"rendered":"<p>What is my biggest frustration?? Well, it would be choosing how to use what energy I have to complete the things that need to be done in a day.\u00a0Especially when there are so many things that need to be done. \u00a0If I break these down to the bare necessities then I am faced with the&hellip; <a href=\"https:\/\/thefibro-lupusbutterfly.com\/?p=153\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">Fibromyalgia  Frustration<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"ngg_post_thumbnail":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[18],"tags":[4],"class_list":["post-153","post","type-post","status-publish","format-standard","hentry","category-living-daily-with-fibromyalgia","tag-fibromyalgia-frustrations","without-featured-image"],"aioseo_notices":[],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/ph40Aj-2t","jetpack-related-posts":[{"id":1648,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1648","url_meta":{"origin":153,"position":0},"title":"Frustration with Fibromyalgia and Lupus","author":"Fibro Momma of 10","date":"March 26, 2026","format":false,"excerpt":"I am beyond frustrated about chronic pain.\u00a0 \u00a0 I never know what a day will bring forth... here is an example of my week so far... This past Monday, I had a horrible pain day.\u00a0 I could barely move, my brain wasn't working well and I had what I call\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/03\/20260326_092321-480x640.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1301,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1301","url_meta":{"origin":153,"position":1},"title":"A Beautiful, Spring Fibromyalgia, Self-Afflicted Pain Day!","author":"fibropage1","date":"June 11, 2019","format":false,"excerpt":"I awoke to a beautiful, crisp spring morning. The breeze was coming out of the NNE. I poured a cup of decaf coffee (I have a PVC Heart Arrhythmia which means no caffeine). I went outside to sit on my new wooden swing and took in the day! It almost\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":1756,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1756","url_meta":{"origin":153,"position":2},"title":"Recovering from a Routine Change is Rough when you have Fibromyalgia and\/or Lupus","author":"Fibro Momma of 10","date":"April 29, 2026","format":false,"excerpt":"Keeping a routine is crucial when you suffer from Lupus and Fibromyalgia. It can take days to recover from a routine change when you have Fibromyalgia and\/or Lupus. When your routine changes, the pain levels soar, energy levels decrease and cognitive issues begin. The first clue my body gives me\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/20260429_100334-480x640.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1840,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1840","url_meta":{"origin":153,"position":3},"title":"A Husband&#8217;s View of Lupus and Fibromyalgia","author":"Fibro Momma of 10","date":"May 8, 2026","format":false,"excerpt":"In honor of National\u00a0Lupus Awareness Day (May 10th) and National Fibromyalgia Awareness Day (May 12th), my hubby wrote a few words to share with other husbands who are wanting to help their wives who are battling Fibromyalgia and\/or Lupus. \"As a husband living with a Fibro\/Lupus sufferer, it can be\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=700%2C400&ssl=1 2x"},"classes":[]},{"id":1682,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1682","url_meta":{"origin":153,"position":4},"title":"Feeling run-over, but with no regrets","author":"Fibro Momma of 10","date":"April 9, 2026","format":false,"excerpt":"Yesterday I did a thing and today I feel the affects of it. Did I know when I set out to drive 1.5 hours (each way) to visit my grandkiddos yesterday that I would feel completely run over today?\u00a0 \u00a0 Well, yes and no.\u00a0 Yes, because ever since Fibromyalgia entered\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/Screenshot_20250519_063915_Chrome.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1632,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1632","url_meta":{"origin":153,"position":5},"title":"What I do today will Affect My Pain Level Tomorrow","author":"Fibro Momma of 10","date":"February 19, 2026","format":false,"excerpt":"The pain I experience today may not be the same pain I have tomorrow, or what I had yesterday.\u00a0 Depending on what I do will depend on how my pain will be. The funny part of this (sarcasm) is that even if I spent the day resting, it still causes\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]}],"jetpack_likes_enabled":true,"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/posts\/153","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=153"}],"version-history":[{"count":0,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/posts\/153\/revisions"}],"wp:attachment":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=153"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=153"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=153"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}