{"id":1648,"date":"2026-03-26T21:40:32","date_gmt":"2026-03-26T18:10:32","guid":{"rendered":"https:\/\/thefibro-lupusbutterfly.com\/?p=1648"},"modified":"2026-03-26T21:40:36","modified_gmt":"2026-03-26T18:10:36","slug":"frustration-with-fibromyalgia-and-lupus","status":"publish","type":"post","link":"https:\/\/thefibro-lupusbutterfly.com\/?p=1648","title":{"rendered":"Frustration with Fibromyalgia and Lupus"},"content":{"rendered":"\n

I am beyond frustrated about chronic pain.\u00a0<\/h1>\n

\u00a0<\/p>\n

I never know what a day will bring forth… here is an example of my week so far…<\/p>\n

This past Monday, I had a horrible pain day.\u00a0 I could barely move, my brain wasn’t working well and I had what I call a “Fibro Migraine”\u00a0 (that all-consuming pain where my joint pain tries to stretch and reach the pain in my lower neck and temples, causing a “connect-the-dot” sort of pain that radiates EVERYWHERE). All I could do was rest.<\/p>\n

On Tuesday, I had to go into the city to a doctor’s appointment with my husband, and by the end of the day I was completely worn out. By the afternoon, the “connect-the-dot” game was upon me again.<\/p>\n

On Wednesday, I woke feeling relatively good, and decided to use my creative genius to start a sewing project that I have put on the back burner for months. I was in a groove and had a very good day with creativity, which is a mental release for me! I was so happy and almost felt normal.\u00a0<\/em><\/p>\n

Well, today is Thursday.\u00a0 I awoke feeling pretty decent considering I sewed the day before… then, about 9am and feeling okay, I walked with my daughter to the neighbors (2ish acres away) to deliver some home made treats my youngest daughter had made. We stood talking for about 20 minutes in the sun<\/em> and walked back. On the way back, my joints started screaming that “all-too-familiar, burning scream-cry.” I struggled up the hill into our yard and was winded, hurting and could barely move. Once inside, my body gave way. I lost mental ability and any creative drive to complete the sewing task, as was my plan prior to the walk. I HURT<\/em>.<\/p>\n

At 11am I collapsed on my bed and fell fast asleep. 1.5 hours later I emerged from that with a horrible, burning, almost gnawing pain in my hips and joints.\u00a0<\/p>\n

Pain upon awakening from a nap is nothing new, but always disheartening to feel.\u00a0<\/h2>\n

I am so frustrated with fibromyalgia and lupus pain! I never know anymore what I may do that is going to cause issues. I have dealt with these conditions on various levels for over 10 years and I thought I had a pretty good understanding of what I did and the repercussions that would follow. But for the past 6 months or so, I would have to say that all bets are off.<\/p>\n

Nothing I do (or don’t do) makes sense anymore where my pain is concerned.\u00a0<\/h2>\n

I have to take everything moment-by-moment in my day.\u00a0 I do my best to rejoice in the little victories! I can definitely not allow my mind to fall into the trap of frustration to the point of sadness.<\/p>\n

I need to “gird up my loins” and continue on.(Notice the pun?)\"\"<\/h3>\n

Easier said than done, but I MUST.\u00a0<\/p>\n

May God Bless you and your day and may your tomorrow (and mine) be a good pain day.<\/p>\n

God Bless- The Fibro-Lupus Momma of Ten<\/p>\n ","protected":false},"excerpt":{"rendered":"

I am beyond frustrated about chronic pain.\u00a0 \u00a0 I never know what a day will bring forth… here is an example of my week so far… This past Monday, I had a horrible pain day.\u00a0 I could barely move, my brain wasn’t working well and I had what I call a “Fibro Migraine”\u00a0 (that all-consuming… Continue reading Frustration with Fibromyalgia and Lupus<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"ngg_post_thumbnail":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"I am just a mom with Fibromyalgia and Lupus learning to live life out running the wolves. ","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-1648","post","type-post","status-publish","format-standard","hentry","category-uncategorized","without-featured-image"],"aioseo_notices":[],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/ph40Aj-qA","jetpack-related-posts":[{"id":1862,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1862","url_meta":{"origin":1648,"position":0},"title":"Spinal Issues and Fibro and Lupus","author":"Fibro Momma of 10","date":"May 14, 2026","format":false,"excerpt":"Lately my spine has felt more on fire than usual. It hurts to turn my head, lift my arms, and walk. I cannot get comfy sleeping, either. I have trouble reaching up or down without discomfort and I am keenly aware of the pain all day. I have been doing\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/turtle.webp?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1628,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1628","url_meta":{"origin":1648,"position":1},"title":"Surviving Pain with the Gilmore Girls","author":"Fibro Momma of 10","date":"February 18, 2026","format":false,"excerpt":"Last week I finished a television series called Gilmore Girls. It took me a year and a half to finish it.\u00a0For some of you, that may seem like a long time. For others, they may be thinking \"I binged that in 4 months.\" Regardless, that is how long it took\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":1632,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1632","url_meta":{"origin":1648,"position":2},"title":"What I do today will Affect My Pain Level Tomorrow","author":"Fibro Momma of 10","date":"February 19, 2026","format":false,"excerpt":"The pain I experience today may not be the same pain I have tomorrow, or what I had yesterday.\u00a0 Depending on what I do will depend on how my pain will be. 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The forecast says it is to rain non-stop here in the Midwest for the next 10 days and that means nasty pain for Fibro and Lupus sufferers.\u00a0 It is hard for me to manage pain\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/03\/20250212_091455.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1756,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1756","url_meta":{"origin":1648,"position":4},"title":"Recovering from a Routine Change is Rough when you have Fibromyalgia and\/or Lupus","author":"Fibro Momma of 10","date":"April 29, 2026","format":false,"excerpt":"Keeping a routine is crucial when you suffer from Lupus and Fibromyalgia. It can take days to recover from a routine change when you have Fibromyalgia and\/or Lupus. 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