{"id":1652,"date":"2026-03-29T21:47:15","date_gmt":"2026-03-29T18:17:15","guid":{"rendered":"https:\/\/thefibro-lupusbutterfly.com\/?p=1652"},"modified":"2026-04-01T19:05:27","modified_gmt":"2026-04-01T15:35:27","slug":"being-scared-of-living-with-chronic-pain","status":"publish","type":"post","link":"https:\/\/thefibro-lupusbutterfly.com\/?p=1652","title":{"rendered":"Being Scared of Living with Chronic Pain"},"content":{"rendered":"\n\n\n

I’m scared.\u00a0<\/h2>\n

Not scared that someone will harm me. Not scared of dying (because I gave my life to Jesus and I know He has saved me and I will go to heaven). Not scared of animals. Not scared of anything like that.\u00a0<\/p>\n

I’m scared of what I do today and how it will affect my tomorrow.\u00a0\u00a0<\/p>\n

I’m scared of doing things I love knowing how it will make me hurt later.\u00a0<\/p>\n

I’m scared of letting people down when I have to cancel out.\u00a0<\/p>\n

I’m scared of getting in the car and running errands, knowing that tomorrow and subsequent days I will hurt from the driving, getting in and out of the vehicle, walking in the stores…\u00a0 all of it.\u00a0<\/p>\n

I’m scared of hurting more than the normal day’s hurts because I know how badly the regular day-to-day can make me hurt.<\/p>\n

I’m scared that doing normal things, well,\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0-A-N-Y-T-H-I-N-G- , and what happens to me up to 48 hours later.\u00a0<\/p>\n

I’m scared of doing.\u00a0<\/p>\n

Now, here’s the thing… I DO THINGS.<\/h2>\n

I exercise and\/or stretch every day. I walk 1-2 miles outside as weather allows.\u00a0 I ride an Airdyne bike 5x a week, 2-6 miles per day. I bake and sell sour dough bread weekly. I sew pillows and curtains. I paint for fun. I do laundry and cook. I vacuum and dust. I iron my hubby’s work shirts. I pick up dog-poop… Yep, with a funky contraption my daughter bought me, but I pick it up.\u00a0<\/p>\n

I DO THINGS.\u00a0<\/h2>\n

And all those things make me HURT. Sometimes,\u00a0 I hurt so badly I cannot think clearly. Sometimes I need a nap. Sometimes I crash-out on the couch without realizing it. Sometimes it’s all I can do to make myself get up and going. Sometimes I don’t.\u00a0<\/p>\n

Some days are better than others. Some days are worse than others. Some days I can, and some days I cannot.\u00a0<\/p>\n

I am scared of the days when I cannot because it HURTS<\/em>.\u00a0<\/p>\n

I’m talking heating pad, knee, elbow, wrist, ankle and back braces-the whole shabang! I’m talking, barely mobile with the inability to think and having to rely on my daughters for things,\u00a0 etc. I HATE relying on anyone. I miss me.\u00a0<\/p>\n

I lost myself somewhere in the pain of living. I think that’s what scares me the most.\u00a0<\/p>\n

So, to all of you who are scared of doing for fear of the repercussions it will bring-I get it.<\/em>\u00a0<\/p>\n

Fibromyalgia and Lupus are two of the most misunderstood conditions out there.\u00a0<\/p>\n

We need to make people aware and show them we are warriors. Anyone who really knows us, sees the warrior inside.\u00a0<\/p>\n

We need to keep doing! Keep going! Keep resting!\u00a0<\/p>\n

Whatever it takes to keep living, despite being scared of the pain.\u00a0<\/p>\n

My peptalk here is probably more to myself than to you. But there it is. <\/p>\n

Stay Strong!<\/p>\n

~The Fibro-Lupus Momma\u00a0<\/p>\n

\"\"<\/p>\n\n\n\n\n ","protected":false},"excerpt":{"rendered":"

I’m scared.\u00a0 Not scared that someone will harm me. Not scared of dying (because I gave my life to Jesus and I know He has saved me and I will go to heaven). Not scared of animals. Not scared of anything like that.\u00a0 I’m scared of what I do today and how it will affect… Continue reading Being Scared of Living with Chronic Pain<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"ngg_post_thumbnail":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"Living daily with chronic pain conditions like Fibromyalgia and Lupus is a rough thing. Being scares is normal. Stay Strong! ","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-1652","post","type-post","status-publish","format-standard","hentry","category-uncategorized","without-featured-image"],"aioseo_notices":[],"aioseo_head":"\n\t\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t