{"id":1652,"date":"2026-03-29T21:47:15","date_gmt":"2026-03-29T18:17:15","guid":{"rendered":"https:\/\/thefibro-lupusbutterfly.com\/?p=1652"},"modified":"2026-04-01T19:05:27","modified_gmt":"2026-04-01T15:35:27","slug":"being-scared-of-living-with-chronic-pain","status":"publish","type":"post","link":"https:\/\/thefibro-lupusbutterfly.com\/?p=1652","title":{"rendered":"Being Scared of Living with Chronic Pain"},"content":{"rendered":"\n\n\n

I’m scared.\u00a0<\/h2>\n

Not scared that someone will harm me. Not scared of dying (because I gave my life to Jesus and I know He has saved me and I will go to heaven). Not scared of animals. Not scared of anything like that.\u00a0<\/p>\n

I’m scared of what I do today and how it will affect my tomorrow.\u00a0\u00a0<\/p>\n

I’m scared of doing things I love knowing how it will make me hurt later.\u00a0<\/p>\n

I’m scared of letting people down when I have to cancel out.\u00a0<\/p>\n

I’m scared of getting in the car and running errands, knowing that tomorrow and subsequent days I will hurt from the driving, getting in and out of the vehicle, walking in the stores…\u00a0 all of it.\u00a0<\/p>\n

I’m scared of hurting more than the normal day’s hurts because I know how badly the regular day-to-day can make me hurt.<\/p>\n

I’m scared that doing normal things, well,\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0-A-N-Y-T-H-I-N-G- , and what happens to me up to 48 hours later.\u00a0<\/p>\n

I’m scared of doing.\u00a0<\/p>\n

Now, here’s the thing… I DO THINGS.<\/h2>\n

I exercise and\/or stretch every day. I walk 1-2 miles outside as weather allows.\u00a0 I ride an Airdyne bike 5x a week, 2-6 miles per day. I bake and sell sour dough bread weekly. I sew pillows and curtains. I paint for fun. I do laundry and cook. I vacuum and dust. I iron my hubby’s work shirts. I pick up dog-poop… Yep, with a funky contraption my daughter bought me, but I pick it up.\u00a0<\/p>\n

I DO THINGS.\u00a0<\/h2>\n

And all those things make me HURT. Sometimes,\u00a0 I hurt so badly I cannot think clearly. Sometimes I need a nap. Sometimes I crash-out on the couch without realizing it. Sometimes it’s all I can do to make myself get up and going. Sometimes I don’t.\u00a0<\/p>\n

Some days are better than others. Some days are worse than others. Some days I can, and some days I cannot.\u00a0<\/p>\n

I am scared of the days when I cannot because it HURTS<\/em>.\u00a0<\/p>\n

I’m talking heating pad, knee, elbow, wrist, ankle and back braces-the whole shabang! I’m talking, barely mobile with the inability to think and having to rely on my daughters for things,\u00a0 etc. I HATE relying on anyone. I miss me.\u00a0<\/p>\n

I lost myself somewhere in the pain of living. I think that’s what scares me the most.\u00a0<\/p>\n

So, to all of you who are scared of doing for fear of the repercussions it will bring-I get it.<\/em>\u00a0<\/p>\n

Fibromyalgia and Lupus are two of the most misunderstood conditions out there.\u00a0<\/p>\n

We need to make people aware and show them we are warriors. Anyone who really knows us, sees the warrior inside.\u00a0<\/p>\n

We need to keep doing! Keep going! Keep resting!\u00a0<\/p>\n

Whatever it takes to keep living, despite being scared of the pain.\u00a0<\/p>\n

My peptalk here is probably more to myself than to you. But there it is. <\/p>\n

Stay Strong!<\/p>\n

~The Fibro-Lupus Momma\u00a0<\/p>\n

\"\"<\/p>\n\n\n\n\n ","protected":false},"excerpt":{"rendered":"

I’m scared.\u00a0 Not scared that someone will harm me. Not scared of dying (because I gave my life to Jesus and I know He has saved me and I will go to heaven). Not scared of animals. Not scared of anything like that.\u00a0 I’m scared of what I do today and how it will affect… Continue reading Being Scared of Living with Chronic Pain<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"ngg_post_thumbnail":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"Living daily with chronic pain conditions like Fibromyalgia and Lupus is a rough thing. Being scares is normal. Stay Strong! 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The funny part of this (sarcasm) is that even if I spent the day resting, it still causes\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":1840,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1840","url_meta":{"origin":1652,"position":1},"title":"A Husband’s View of Lupus and Fibromyalgia","author":"Fibro Momma of 10","date":"May 8, 2026","format":false,"excerpt":"In honor of National\u00a0Lupus Awareness Day (May 10th) and National Fibromyalgia Awareness Day (May 12th), my hubby wrote a few words to share with other husbands who are wanting to help their wives who are battling Fibromyalgia and\/or Lupus. \"As a husband living with a Fibro\/Lupus sufferer, it can be\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/05\/Screenshot_20250810_210737_Facebook.jpg?resize=700%2C400&ssl=1 2x"},"classes":[]},{"id":612,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=612","url_meta":{"origin":1652,"position":2},"title":"Fibromyalgia and the Guilt Complex","author":"fibropage1","date":"September 23, 2017","format":false,"excerpt":"You may have read on other blogs about how some people with Fibromyalgia lovingly tell friends and family that they cannot attend an event or host a gathering and bow-out \"gracefully.\" In this post I we will speak about the realities of the guilt involved by doing this and its\u2026","rel":"","context":"In "Fibromyalgia Family Life"","block_context":{"text":"Fibromyalgia Family Life","link":"https:\/\/thefibro-lupusbutterfly.com\/?cat=21"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2017\/08\/3546ea813f79a4b657ac2cb8ad1ff0c7-fibromyalgia-quotes-chronic-illness.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1648,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1648","url_meta":{"origin":1652,"position":3},"title":"Frustration with Fibromyalgia and Lupus","author":"Fibro Momma of 10","date":"March 26, 2026","format":false,"excerpt":"I am beyond frustrated about chronic pain.\u00a0 \u00a0 I never know what a day will bring forth... here is an example of my week so far... This past Monday, I had a horrible pain day.\u00a0 I could barely move, my brain wasn't working well and I had what I call\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/03\/20260326_092321-480x640.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1617,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1617","url_meta":{"origin":1652,"position":4},"title":"Adrenaline Monsters are Never Good","author":"Fibro Momma of 10","date":"February 2, 2026","format":false,"excerpt":"Being an adrenaline junky is not healthy, so when that adrenaline monster rears its head, be careful or it will consume you! Unfortunately for most Fibromyalgia and Lupus sufferers, adrenaline is how we can get anything done.\u00a0 Once my adrenaline kicks in, whether in creative thought or out of necessity,\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/02\/20260201_170253-595x677.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/02\/20260201_170253-595x677.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/02\/20260201_170253-595x677.jpg?resize=525%2C300&ssl=1 1.5x"},"classes":[]},{"id":1628,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1628","url_meta":{"origin":1652,"position":5},"title":"Surviving Pain with the Gilmore Girls","author":"Fibro Momma of 10","date":"February 18, 2026","format":false,"excerpt":"Last week I finished a television series called Gilmore Girls. It took me a year and a half to finish it.\u00a0For some of you, that may seem like a long time. For others, they may be thinking \"I binged that in 4 months.\" Regardless, that is how long it took\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]}],"jetpack_likes_enabled":true,"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/posts\/1652","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1652"}],"version-history":[{"count":0,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/posts\/1652\/revisions"}],"wp:attachment":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1652"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1652"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1652"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}