{"id":1756,"date":"2026-04-29T18:42:36","date_gmt":"2026-04-29T15:12:36","guid":{"rendered":"https:\/\/thefibrolupusbutterf2647.live-website.com\/?p=1756"},"modified":"2026-04-29T18:42:40","modified_gmt":"2026-04-29T15:12:40","slug":"recovering-from-a-routine-change-is-rough-when-you-have-fibromyalgia-and-or-lupus","status":"publish","type":"post","link":"https:\/\/thefibro-lupusbutterfly.com\/?p=1756","title":{"rendered":"Recovering from a Routine Change is Rough when you have Fibromyalgia and\/or Lupus"},"content":{"rendered":"\n<h3>Keeping a routine is crucial when you suffer from Lupus and Fibromyalgia.<\/h3>\n<p>It can take days to recover from a routine change when you have Fibromyalgia and\/or Lupus. When your routine changes, the pain levels soar, energy levels decrease and cognitive issues begin. The first clue my body gives me when there has been a change in my routine is the way I think&#8230; or rather, lack of the ability to think.\u00a0<\/p>\n<p>Cognitive issues are real when you have Fibro and\/or Lupus. Forgetfulness, like walking into a room and forgetting why you went in there is common, but how about losing your words mid-sentence? What about hunting the mind for words and definitions you have always used, but that day, you cannot remember what the word for an egg is. Your brain simply <em>cannot<\/em> on those days; it is a rough thing.\u00a0<\/p>\n<p>I am in my fifties and perhaps an element of what I described is due in part to age. But if you have Fibro, Lupus, RA, PsA, etc., cognitive issues may not be age related but are a part of these conditions. I awoke this morning and just knew today would be a difficult cognitive day. Just typing this has taken me 3x as long as usual.<\/p>\n<p>Today, I keep forgetting where the letters on the keyboard are and what I was preparing to type. I keep typing words <em>backwards, <\/em>like my mind cannot remember the correct way to spell. It feels like my brain is a thick patch of mud and the words are being sucked under just as soon as I can get them out.\u00a0<\/p>\n<p>I am suffering from a routine change with cognitive and whole-body pains because last week I spontaneously decided to drive 3 hours round-trip to get my grandkiddos for a few days. For me, driving is always a bad idea as that will send me into a flare pretty quick.\u00a0 Having 2 children under age eight is a definite change in routine for me.\u00a0 I enjoyed them immensely, but my body was so done when they left! Thankfully, their parents came to get them, because if I had to drive them back again, it would have sent me over the pain-limit and energy threshold! Add a trip to the city for doctor&#8217;s appointments yesterday, and I have had no time to re-establish my routine and allow my body to rest.<\/p>\n<h2><em>The pain is so there<\/em>&#8230;<\/h2>\n<p>Changes in routine might also be felt when you have somewhere to be, like a doctor&#8217;s appointment or the grocery store. These changes are anticipated changes and usually aren&#8217;t felt as much but still may cause a flare. Mostly, it is the out-of-the-ordinary changes that is rough on my body. The &#8220;extra stop at the store&#8221; just because you pass it and it&#8217;s convenient, justifying at the time that it&#8217;ll help you out later by not having to go out again.\u00a0 That&#8217;s a dangerous mind trick and a tactic used to derail me quickly. I try not to fall prey to that blunder and stay focused only on what I have to do that day. I know my body will thank me later.\u00a0<\/p>\n<h2>Life can throw us curveballs. It is up to us to dodge them or catch them, but regardless, do our best not to get smacked in the face by them.\u00a0<\/h2>\n<p>Routine is important for everyone, but for Lupus and\/or Fibro sufferers, it is crucial for our well-being. Routine helps us stay the course and have smoother sailing as the days go by.\u00a0<\/p>\n<p>It is my hope and prayer that your day has no mishaps that may cause you a flare. We deal with enough pain on a regular day, don&#8217;t we?\u00a0<\/p>\n<p>God Bless-<\/p>\n<p>~The Fibro-Lupus Momma and Ten<\/p>\n\n\n\n<p><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" data-attachment-id=\"1760\" data-permalink=\"https:\/\/thefibro-lupusbutterfly.com\/?attachment_id=1760\" data-orig-file=\"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/20260429_100334-scaled.jpg?fit=2560%2C2165&amp;ssl=1\" data-orig-size=\"2560,2165\" data-comments-opened=\"1\" data-image-meta=\"{&quot;aperture&quot;:&quot;1.7&quot;,&quot;camera&quot;:&quot;Galaxy S23 Ultra&quot;,&quot;created_timestamp&quot;:&quot;1777457014&quot;,&quot;focal_length&quot;:&quot;6.3&quot;,&quot;iso&quot;:&quot;250&quot;,&quot;shutter_speed&quot;:&quot;0.0083&quot;,&quot;orientation&quot;:&quot;1&quot;}\" data-image-title=\"20260429_100334\" data-image-description=\"\" data-image-caption=\"\" data-large-file=\"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/20260429_100334-scaled.jpg?fit=825%2C698&amp;ssl=1\" class=\"aligncenter size-thumbnail wp-image-1760\" src=\"https:\/\/i0.wp.com\/thefibrolupusbutterf2647.live-website.com\/wp-content\/uploads\/2026\/04\/20260429_100334-480x640.jpg?resize=480%2C640&#038;ssl=1\" alt=\"\" width=\"480\" height=\"640\" srcset=\"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/20260429_100334-scaled.jpg?resize=480%2C640&amp;ssl=1 480w, https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/20260429_100334-scaled.jpg?zoom=2&amp;resize=480%2C640&amp;ssl=1 960w, https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/20260429_100334-scaled.jpg?zoom=3&amp;resize=480%2C640&amp;ssl=1 1440w\" sizes=\"auto, (max-width: 480px) 100vw, 480px\" \/><\/p>\n\n\n\n\n\n\n","protected":false},"excerpt":{"rendered":"<p>Keeping a routine is crucial when you suffer from Lupus and Fibromyalgia. It can take days to recover from a routine change when you have Fibromyalgia and\/or Lupus. When your routine changes, the pain levels soar, energy levels decrease and cognitive issues begin. The first clue my body gives me when there has been a&hellip; <a href=\"https:\/\/thefibro-lupusbutterfly.com\/?p=1756\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">Recovering from a Routine Change is Rough when you have Fibromyalgia and\/or Lupus<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"ngg_post_thumbnail":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"Routine changes are rough on Fibromyalgia and Lupus sufferers. ","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-1756","post","type-post","status-publish","format-standard","hentry","category-uncategorized","without-featured-image"],"jetpack_publicize_connections":[],"jetpack_shortlink":"https:\/\/wp.me\/p8ZH8C-sk","jetpack-related-posts":[{"id":1475,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1475","url_meta":{"origin":1756,"position":0},"title":"May is Lupus and Fibromyalgia Awareness Month","author":"Fibro Momma of 10","date":"May 19, 2025","format":false,"excerpt":"Many people have probably heard of Lupus and Fibromyalgia before or they know someone who suffers, but they don't understand what they suffer from.\u00a0 Well, I hope by the time you finish reading this, you will have a better understanding of both of these horrific conditions that millions of people\u2026","rel":"","context":"In \"Fibromyalgia =\"","block_context":{"text":"Fibromyalgia =","link":"https:\/\/thefibro-lupusbutterfly.com\/?tag=fibromyalgia"},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":1535,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1535","url_meta":{"origin":1756,"position":1},"title":"When Lupus Hits Hard","author":"Fibro Momma of 10","date":"July 8, 2025","format":false,"excerpt":"Back in 2015, I was diagnosed with Fibromyalgia and then in 2016, I had a Lupus diagnosis with positive ANA and Anti-dsDNA testing, along with the classic Lupus symptoms, but I honestly decided that was more than I needed to deal with because, at that time, my husband had blood\u2026","rel":"","context":"With 1 comment","block_context":{"text":"With 1 comment","link":"https:\/\/thefibro-lupusbutterfly.com\/?p=1535#comments"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibrolupusbutterf2647.live-website.com\/wp-content\/uploads\/2025\/07\/facebook-595x336.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/thefibrolupusbutterf2647.live-website.com\/wp-content\/uploads\/2025\/07\/facebook-595x336.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/thefibrolupusbutterf2647.live-website.com\/wp-content\/uploads\/2025\/07\/facebook-595x336.jpg?resize=525%2C300&ssl=1 1.5x"},"classes":[]},{"id":1600,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1600","url_meta":{"origin":1756,"position":2},"title":"Managing 2025 with Fibromyalgia and Lupus","author":"Fibro Momma of 10","date":"December 31, 2025","format":false,"excerpt":"As I sit here on December 31, 2025, I find myself pondering the year.\u00a0 For me it was not a good year as I count years to be. My health wavered from the beginning, starting with a lot of stress dancing around my life that I tried not to let\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibrolupusbutterf2647.live-website.com\/wp-content\/uploads\/2025\/12\/2026-595x574.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/thefibrolupusbutterf2647.live-website.com\/wp-content\/uploads\/2025\/12\/2026-595x574.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/thefibrolupusbutterf2647.live-website.com\/wp-content\/uploads\/2025\/12\/2026-595x574.jpg?resize=525%2C300&ssl=1 1.5x"},"classes":[]},{"id":1632,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1632","url_meta":{"origin":1756,"position":3},"title":"What I do today will Affect My Pain Level Tomorrow","author":"Fibro Momma of 10","date":"February 19, 2026","format":false,"excerpt":"The pain I experience today may not be the same pain I have tomorrow, or what I had yesterday.\u00a0 Depending on what I do will depend on how my pain will be. The funny part of this (sarcasm) is that even if I spent the day resting, it still causes\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":1843,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1843","url_meta":{"origin":1756,"position":4},"title":"Journaling with Fibromyalgia and Lupus","author":"The Fibro-Lupus Butterfly","date":"June 23, 2026","format":false,"excerpt":"Let's face it. Some days are just harder than others. Some days you can walk, lift, reach, scrub, and sweep without a lot of issues. Other days you can barely get up and brush your teeth. Why does this happen? 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It is also Lupus Awareness Month. Please be compassionate to those who suffer from either of these two conditions...or worse, both. 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