{"id":1756,"date":"2026-04-29T18:42:36","date_gmt":"2026-04-29T15:12:36","guid":{"rendered":"https:\/\/thefibro-lupusbutterfly.com\/?p=1756"},"modified":"2026-04-29T18:42:40","modified_gmt":"2026-04-29T15:12:40","slug":"recovering-from-a-routine-change-is-rough-when-you-have-fibromyalgia-and-or-lupus","status":"publish","type":"post","link":"https:\/\/thefibro-lupusbutterfly.com\/?p=1756","title":{"rendered":"Recovering from a Routine Change is Rough when you have Fibromyalgia and\/or Lupus"},"content":{"rendered":"\n<h3>Keeping a routine is crucial when you suffer from Lupus and Fibromyalgia.<\/h3>\n<p>It can take days to recover from a routine change when you have Fibromyalgia and\/or Lupus. When your routine changes, the pain levels soar, energy levels decrease and cognitive issues begin. The first clue my body gives me when there has been a change in my routine is the way I think&#8230; or rather, lack of the ability to think.\u00a0<\/p>\n<p>Cognitive issues are real when you have Fibro and\/or Lupus. Forgetfulness, like walking into a room and forgetting why you went in there is common, but how about losing your words mid-sentence? What about hunting the mind for words and definitions you have always used, but that day, you cannot remember what the word for an egg is. Your brain simply <em>cannot<\/em> on those days; it is a rough thing.\u00a0<\/p>\n<p>I am in my fifties and perhaps an element of what I described is due in part to age. But if you have Fibro, Lupus, RA, PsA, etc., cognitive issues may not be age related but are a part of these conditions. I awoke this morning and just knew today would be a difficult cognitive day. Just typing this has taken me 3x as long as usual.<\/p>\n<p>Today, I keep forgetting where the letters on the keyboard are and what I was preparing to type. I keep typing words <em>backwards, <\/em>like my mind cannot remember the correct way to spell. It feels like my brain is a thick patch of mud and the words are being sucked under just as soon as I can get them out.\u00a0<\/p>\n<p>I am suffering from a routine change with cognitive and whole-body pains because last week I spontaneously decided to drive 3 hours round-trip to get my grandkiddos for a few days. For me, driving is always a bad idea as that will send me into a flare pretty quick.\u00a0 Having 2 children under age eight is a definite change in routine for me.\u00a0 I enjoyed them immensely, but my body was so done when they left! Thankfully, their parents came to get them, because if I had to drive them back again, it would have sent me over the pain-limit and energy threshold! Add a trip to the city for doctor&#8217;s appointments yesterday, and I have had no time to re-establish my routine and allow my body to rest.<\/p>\n<h2><em>The pain is so there<\/em>&#8230;<\/h2>\n<p>Changes in routine might also be felt when you have somewhere to be, like a doctor&#8217;s appointment or the grocery store. These changes are anticipated changes and usually aren&#8217;t felt as much but still may cause a flare. Mostly, it is the out-of-the-ordinary changes that is rough on my body. The &#8220;extra stop at the store&#8221; just because you pass it and it&#8217;s convenient, justifying at the time that it&#8217;ll help you out later by not having to go out again.\u00a0 That&#8217;s a dangerous mind trick and a tactic used to derail me quickly. I try not to fall prey to that blunder and stay focused only on what I have to do that day. I know my body will thank me later.\u00a0<\/p>\n<h2>Life can throw us curveballs. It is up to us to dodge them or catch them, but regardless, do our best not to get smacked in the face by them.\u00a0<\/h2>\n<p>Routine is important for everyone, but for Lupus and\/or Fibro sufferers, it is crucial for our well-being. Routine helps us stay the course and have smoother sailing as the days go by.\u00a0<\/p>\n<p>It is my hope and prayer that your day has no mishaps that may cause you a flare. We deal with enough pain on a regular day, don&#8217;t we?\u00a0<\/p>\n<p>God Bless-<\/p>\n<p>~The Fibro-Lupus Momma and Ten<\/p>\n\n\n\n<p><img loading=\"lazy\" decoding=\"async\" data-attachment-id=\"1760\" data-permalink=\"https:\/\/thefibro-lupusbutterfly.com\/?attachment_id=1760\" data-orig-file=\"https:\/\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/20260429_100334-scaled.jpg\" data-orig-size=\"2560,2165\" data-comments-opened=\"1\" data-image-meta=\"{&quot;aperture&quot;:&quot;1.7&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;Galaxy S23 Ultra&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;1777457014&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;6.3&quot;,&quot;iso&quot;:&quot;250&quot;,&quot;shutter_speed&quot;:&quot;0.0083&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;1&quot;}\" data-image-title=\"20260429_100334\" data-image-description=\"\" data-image-caption=\"\" data-large-file=\"https:\/\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/20260429_100334-960x812.jpg\" class=\"aligncenter size-thumbnail wp-image-1760\" src=\"https:\/\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/20260429_100334-480x640.jpg\" alt=\"\" width=\"480\" height=\"640\" \/><\/p>\n\n\n\n\n\n\n ","protected":false},"excerpt":{"rendered":"<p>Keeping a routine is crucial when you suffer from Lupus and Fibromyalgia. It can take days to recover from a routine change when you have Fibromyalgia and\/or Lupus. When your routine changes, the pain levels soar, energy levels decrease and cognitive issues begin. The first clue my body gives me when there has been a&hellip; <a href=\"https:\/\/thefibro-lupusbutterfly.com\/?p=1756\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">Recovering from a Routine Change is Rough when you have Fibromyalgia and\/or Lupus<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"ngg_post_thumbnail":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"Routine changes are rough on Fibromyalgia and Lupus sufferers. 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Did I know when I set out to drive 1.5 hours (each way) to visit my grandkiddos yesterday that I would feel completely run over today?\u00a0 \u00a0 Well, yes and no.\u00a0 Yes, because ever since Fibromyalgia entered\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/04\/Screenshot_20250519_063915_Chrome.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1632,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1632","url_meta":{"origin":1756,"position":1},"title":"What I do today will Affect My Pain Level Tomorrow","author":"Fibro Momma of 10","date":"February 19, 2026","format":false,"excerpt":"The pain I experience today may not be the same pain I have tomorrow, or what I had yesterday.\u00a0 Depending on what I do will depend on how my pain will be. The funny part of this (sarcasm) is that even if I spent the day resting, it still causes\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":1706,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1706","url_meta":{"origin":1756,"position":2},"title":"Proud While In Pain","author":"Fibro Momma of 10","date":"April 14, 2026","format":false,"excerpt":"I do my best not to dwell on my pain. Some days are easier than others. I have dealt with Fibromyalgia and Lupus for over a decade and pretty much know what affects me. Some days, though, are a beast! During the past decade, I graduated 5 more kiddos from\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2019\/06\/20190603_180218-1-e1559603869603-480x640.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]},{"id":1636,"url":"https:\/\/thefibro-lupusbutterfly.com\/?p=1636","url_meta":{"origin":1756,"position":3},"title":"Rainy Days, Baking and Fibromyalgia","author":"Fibro Momma of 10","date":"March 3, 2026","format":false,"excerpt":"Today I awoke to rain. And not just a little rain, but a continual dropping. The forecast says it is to rain non-stop here in the Midwest for the next 10 days and that means nasty pain for Fibro and Lupus sufferers.\u00a0 It is hard for me to manage pain\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/thefibro-lupusbutterfly.com\/wp-content\/uploads\/2026\/03\/20250212_091455.jpg?resize=350%2C200&ssl=1","width":350,"height":200},"classes":[]}],"jetpack_likes_enabled":true,"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/posts\/1756","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1756"}],"version-history":[{"count":4,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/posts\/1756\/revisions"}],"predecessor-version":[{"id":1761,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=\/wp\/v2\/posts\/1756\/revisions\/1761"}],"wp:attachment":[{"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1756"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1756"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/thefibro-lupusbutterfly.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1756"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}