Living Daily with Chronic Invisible Illness

Driving Across 6 States

This week I have been driving across 6 states. 

As of today, I have one more state to go before I reach my destination. Recent blood tests show that I am in a Lupus flare. Driving with Fibromyalgia is hard enough, but driving in a Lupus flare makes things a “bit” more adventurous! The steroids my PCP put me on are no more and my body definitely feels like it!! One day at a time, one minute at a time!!

I am headed west to take care of my mom for a few weeks. This trip was planned way before my (new-again Lupus diagnosis); You know, the diagnosis where I finally BELIEVE I have it.  

I am the driver on this trip, and I made sure I stopped every 2 hours to walk a bit and to keep blood clots away, per my doctor’s advice. I spent no more than 6-7 hours per day in the car and stayed at Holiday Inn Express Hotels because, in my opinion, they have the comfiest beds for the price. 

My right knee swelled on day one, so I used the knee brace I brought with me. Each night I have used the heating pad I packed to help soothe my aching hips and lower back. I am traveling with my teenage daughter, so I even put her to use, and she has helped rub out my tired, aching, arm and shoulder muscles from driving, as needed. 

Sunscreen has become my new friend, and since I am going west, it will definitely be needed!

So, as you travel this summer, be sure to pace yourself, walk and do your best each day!  I am doing my best to take my own advice! ha-ha

We are Lupus warriors, after all!

~The Fibro-Lupus Momma

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