Dealing with Fibromyalgia and taking care of your spouse who has Myelofibrosis can be complicated, but taking things one day at a time; one moment at a time, is the best approach. Seven years ago my husband was diagnosed with MDS-Myelodysplastic Syndrome. Four years into that, a bone marrow biopsy changed the diagnosis to include MF-Myelofibrosis.… Continue reading Myelofibrosis and Fibromyalgia
I pretty much shelved this blog due to all the Covid19 goings-on. The drama online was enough to keep me from the internet. Nothing has been positive and all seems to be gloom and doom, political and demeaning. So here I sit, many wondering if I am still alive and kicking... Alive, yes. Kicking...well, if… Continue reading Still Alive
Don't you hate it when people who don't know how you really feel offer you advice on how to feel better? Or worse, they tell you everything they think you are doing wrong and how they think you should fix it...then you would not hurt so bad physically? If you suffer from any type of… Continue reading Advice You Dont Want About Fibromyalgia
I am a sufferer of Fibromyalgia...I have had a pretty crazy winter so far and this blog was not something I could keep up with. Let me backtrack... I am a mother of ten children, wife to a wonderful husband of almost thirty years. Last fall, my last two sons at home joined the United… Continue reading Handling Life with Fibromyalgia
For the past few days I have been visiting my Navy son in Florida. I was really hoping all this Fibro stuff would just melt off me like a dripping popsicle. Unfortunately it has not. In fact, I have learned that the south and I do not get along at all. From being overtaken by… Continue reading Traveling with Fibro
Today I am just writing a blog about living with Fibromyalgia. What does that mean? It means that I am just a normal person whose life has ups and down same as anyone. Sad days, happy days. Emotional days and steady days. I am just your average Jolene who has a life she is trying… Continue reading Just a Blog About Fibro
I try to keep my blog topics on the lighter side of pain...which is somewhat of a challenge since pain is my daily companion. Take today. I am dealing with the pains from the past 72 hours of non-stop preparing for a double going away party for our two sons who have joined the United… Continue reading
A while back I made a post about Plantar Fasciitis and Bursitis. While I suffer from Fibromyalgia, which causes a host of debilitating pains, Plantar Fasciitis and Burstis is now among the list. In fact, the heel pain I experience has now become my constant companion. Almost two months ago I had cortisone injections in… Continue reading Plantar Fasciitis and Bursitis
Today I am zombified. Is that a word? Well, when you have Fibromyalgia, it should be a word. My definition of zombified is when you wake up and suddenly realize your body and mind don't work. You feel intense pain in all your joints, down your spine...everywhere, kinda like the immediate onset of influenza! Your… Continue reading Fibromyalgia Zombie
When you have Fibromyalgia and your brain does not cooperate with what you need to get done, it makes getting through the day quite the challenge! This morning I set out to check off my list of " things-to-do-today" as I did them. However, I had numerous interruptions; ie, the internet man showed up earlier… Continue reading Fibromyalgia and Brain Fog
My husband has cancer of the bone marrow called Myelofibrosis. He has been receiving blood transfusions for over a year. He was receiving them about every 14-16 days until this past winter when his body began requiring them about every 9-12 days; 2 units each time. As a Fibromyalgia sufferer, I deal with the ups… Continue reading Loving Someone with Cancer When You Have Fibromyalgia
I awoke to a beautiful, crisp spring morning. The breeze was coming out of the NNE. I poured a cup of decaf coffee (I have a PVC Heart Arrhythmia which means no caffeine). I went outside to sit on my new wooden swing and took in the day! It almost felt like autumn! Here in… Continue reading A Beautiful, Spring Fibromyalgia, Self-Afflicted Pain Day!
Vionics have helped my Plantar Fasciitis
My Fibromyalgia pain is always there, hovering, sometimes just on the surface, ready to become a flare at any moment. I have recently had a few weeks where my pain was manageable and getting through the day was not too bad. About a month ago I had a flare that lasted 6 straight days. It… Continue reading Fibromyalgia Pain Waves
No where is it written that life is easy because you have no physical pain. No where is it written that life is easy because you don't.
The amount of stress a person is under can greatly affect how they feel physically, especially if you suffer from Fibromyalgia. Emotional stress might be hidden beneath a facade of, perhaps, a smile and pleasant countenance, but underneath it is causing damage to your body. Emotional stress eats away at you until you suddenly split… Continue reading Fibromyalgia and Emotional Stress
I have Fibromyalgia. I also have the tendency to be ridiculously meticulous. Is it OCD?
Multi-tasking is over rated and when you suffer from Fibromyalgia, it can be detrimental to your brains well being.
I suffer from Fibromyalgia. I have multiple days in a row where I seem to have more energy and I also have trouble sleeping. Then, I have found the opposite to be true; days in succession where I am so fatigued I can barely function. Whether I have energy or am fatigued, every single day… Continue reading Living in the Midwest with Fibromyalgia
I have just been through an awful ten days of pain and a seemingly never-ending flare-up from Fibromyalgia. When a flare starts, it may end in an hour, it may end in a day, but sometimes it goes on for over a week. When you suffer from Fibromyalgia you NEVER KNOW how long a flare… Continue reading 10 Day Fibromyalgia Flare
I took a few months sabbatical, not because I wanted to, but because my life was not conducive to stopping to write this blog, let alone stopping for anything else! At the end of October 2018 our 23 year old daughter got engaged. (applause all around!) And then it happened- They desired a January 2019… Continue reading Fibromyalgia and a Creative Thought
This Momma struggles to find her way through autumn days while suffering from Fibromyalgia
I have Fibromyalgia and fight the pains in my body 24/7. It is a seemingly never-ending whirlwind of pain and labeled an invisible illness because those of us who have it look pretty darn good on the outside, but on the inside we are battling those pains through the smiles we have programmed ourselves to… Continue reading What NOT to say when you have Fibromyalgia
I have Fibromyalgia. That dread condition where you hurt all over, all the time. Today I find myself behind my computer with the Pride and Prejudice soundtrack playing and my grandson asleep next to me. Life is pretty good! Today I have created Christmas cards online, paid bills and enjoyed lunch with my kiddos. My… Continue reading A Quiet Autumn Afternoon in Pain
Yesterday I had another episode where my entire body locked up for a good 30 minutes from severe pain. Was it the weather? Was it lifting a heavy pot of water to boil pasta? Or was it just the Fibromyalgia doing what it does? I had spent the morning making a lasagna with my daughters,… Continue reading When Your Body Locks Up from Pain
Well, that long-awaited cool front passed through this afternoon. I would have known without the weather app on my phone preparing me! It is a bittersweet thing for this Fibro gal, those cool fronts. See, I love autumn! The colors, the leaves falling in the breeze, pumpkins and the amazing smells! I have been waiting… Continue reading That Long-awaited Cool Front
Having Fibromyalgia and being creative, like decorating a cake, is quite the challenge! Today after our family Bible study and prayer time it was decided to spontaneously celebrate our daughter's birthday, which is actually next weekend, but due to a music engagement we have way upstate, we will not be able to celebrate it on… Continue reading Being Creative with Fibromyalgia
As summer comes to an end, I am reminded of the blessings life has to offer. Yes, there are blessings to be found if we take the time to look. Summer brought warmth, gardening, flowers and dragonflies! (We won't mention, mosquitos, ticks, and sun rashes...this is a post about finding blessings.) However, if you live… Continue reading Looking for the Blessings with Fibromyalgia
I have felt the physical effects of the past week which offered nothing but continuous rain from remnants of a tropical storm. I chose to be as productive as possible despite how the rains make my Fibromyalgia body feel. I spent one day making several meals for the week and resting, I spent a day… Continue reading Fibromyalgia Makes Every Day Difficult
"Have Mercy upon me, O Lord; For I am weak: O Lord, heal me; … Continue reading Look to the Scriptures when in Pain
Labor Day is the last celebrated American holiday for BBQ's before the weather turns cold. For me, Labor Day has always signified the day before school began. As a child, it was the last "Hooray!" day because you knew that the next day, school would begin. It was a bittersweet time in my childhood. My… Continue reading Labor Day Memories