Living Daily with Chronic Invisible Illness

Fibromyalgia and Emotional Stress

Stress can wreak havoc on anyone’s health, but for a person with Fibromyalgia, it can be gruesome. 

Emotional Stress effects people in different ways. Sadness, grief, joy  and laughter are all emotions, but when intense sadness befalls a Fibro sufferer, it causes pain like no other. 

Recently I encountered a situation where my emotions rose to heights I did not know existed. 

The emotions my body went through was physical pain that was ignored and over-ridden due to the shock, horror, anger, intense sadness, and grief that overcame me all in about 3 minutes. Later, I let loose with tears of grief that literally caused my body to tremble as I let go of my emotions uncontrollably.  

Lack of sleep, an overwhelming sense of urgency and a continuous adrenaline rush for over 36 hours caused my body to respond in a deep, painful way. It got to where I could not sit, stand or walk well. It hurt to move any joints. I tried to keep moving so I would not “lock-up” but eventually I could go on no longer and had to give in to the pain and rest.

Sleep finally came, but only for an hour. When I awoke, I proceded to get up and begin again only to shower and find myself back in bed trying not to focus on all the pains that seemed to crawl out of everywhere. 

A sudden sick child with headache and fever caused my “Mommy-instinct” to work over-time and any chance to sleep was replaced with concern for my child and keeping her fever down. Constant pain from getting up and down made me feel like I had extreme arthritis throughout my body. 

(The fact that it was 7 degrees outside and I had to keep carrying in firewood did not help my pain either, just saying)

I felt I could not catch a break from the pain. How funny is that? Fibros don’t get a break from pain. But when you have emotional stress on top of the everyday Fibro pains, it makes for debilitating and freezing pain. 

Some emotional stress is part of life, but other stress can creep in through the loss of life and even happy emotional stress can cause issues for a Fibro body.  

In my case it was anything but a happy occurrence. None-the-less, I am dealing with it and praying for my body to get through this. An impending Flare is upon me and I must ride it out. 

It is part of living with Fibromyalgia.  

If you are going through a sad, emotional event in your life and you suffer from Fibromyalgia, you are not alone. 

Your fight is real. 

I offer you this, “…to cast your cares upon the Lord..” and allow Him to help you get through it. It is what I do each and every day. 

“This is the Day which the Lord Hath made, we will rejoice and be glad in it.”

“…Weeping may endure for a night, but joy comes in the morning.”

May you find peace amidst your sadness and may your Flare not last too long. 

God Bless-

Fibro Momma of Ten 

Living Daily with Chronic Invisible Illness

Happy 2018 with Fibromyalgia

Happy 2018 with Fibromyalgia!

What? Can you even put the word “happy” with Fibromyalgia?

No, not really.

But it is a new year and everyone says “Happy New Year!!”, right?

A positive outlook is crucial with a condition like Fibromyalgia. Sadly, I must admit that I am not always as upbeat as I try to sound to you all. There are days when I really struggle. There are days when I think I can make it okay. There are even days when I feel I cannot make it and can scarcely move.

My New Year’s resolution is to make my outlook about this horrific condition (that robs you of the life you once had, brings you unrelenting pain with everything you try to do, and causes you to want to curl up and never move again) as positive as possible on a daily basis.

**If at first

you don’t succeed,

try, try again.**

Happy New Year from one Fibro to another! May 2018 bring you and me some pain-free moments that we will cherish forever.

 

 

 

Christmas with Fibromyalgia

Fibromyalgia and Sewing

So, the other night I decided to pretend I didn’t have Fibromyalgia. I know what you’re thinking. How can you forget that you’re in pain? How can you forget the gnawing, aching feelings that last 24/7? How can you forget???

Well, back in my old life of non-Fibro when my oldest daughters were young, I used to sew almost all of their dresses. In fact, I sewed almost everything from curtains to pillows to tablecloths! It was like an outlet for me; A way for me to de-stress and decompress. Even though I had a lot of children running around I often did this late into the evening hours to unwind! I loved it!

That’s why the other night I decided to make one of my daughters a dress. She’s a bit heavier set and loves jumpers! It’s hard for me to find some that fit her so I decided to create my own pattern and make her one. My desire to get this done clouded my proper judgment on how to handle my body and I plunged forward like I used to do.

Needless to say, at 3 a.m. I fell into bed happy, but hurting. At 9 a.m. the next day I awoke to find that the dress fit her and my pattern worked! Yipee!!

What adrenaline I had left kicked in! So, I went downstairs to sew her Christmas dress. While I was in the middle of that my youngest daughter saw what I was doing and told me she would love a matching dress! Well, this was music to my ears and I had just enough fabric to accommodate that request. By 4 p.m. I had sewn two lovely Christmas dresses for my two youngest daughters! The smiles on their faces were worth a thousand pain hours!….

Famous last thoughts as I woke up the next morning and could scarcely move. In fact, I could barely move all day and the demands of motherhood were still upon me; mouths still needed to be fed and life still needed to go on.

By the next day I was pretty much the same-only worse! I tried to rest again by reading quietly to the girls and pace myself and of course those same demands were upon me as they always are! (No complaints here, motherhood is my job…there is no rest for the weary!!)

So what I learned is that I am not the same person I once was! (Did I need convincing?) I can no longer pretend that I don’t have Fibromyalgia. It is a dread disease and one that you cannot ignore try as hard as I do at times.

Do I regret the push through, push through, push through, non-stop sewing spree that I put myself through? Not for the smiles on their faces!

But the pain and fatigue that I put my body through is pretty intense. The repetitious movements of sewing, the bending over the table cutting patterns, the movements if the scissors on my han, the lack of sleep…*big-sigh*

My hope is the flare will be over soon and life can get back to the “new normal” of pacing, resting, and lists. Lots if lists!

Merry Christmas from one Fibro to another!

 

Christmas with Fibromyalgia

Christmas Visitors and Fibromyalgia 

Who doesn’t love the holidays? All the hustle and bustle of Christmas shopping, the twinkling lights everywhere you look, and the entourage of visitors that pass through your home. It’s like something out of Currier and Ives or Norman Rockwell painting.

However, even if you have one visitor this holiday season it can still wreak havoc on a person who suffers from Fibromyalgia; Your routine gets shifted whenever you have company. That’s just par for the course.

I don’t know about you, but my adrenaline (tries to) kicks in whenever I know company is coming. My desire to have my home neat and tidy, possibly wanting to bake cookies and serve iced tea all seem to make my blood pump faster. But what happens at these times is that my body is working overtime. Because of the adrenaline surge I don’t usually pay attention to my body’s signals to slow down-all the aches and pains and dragging feeling-as I should. When I finally do decide that I’ve had enough and MUST STOP to rest, the pain is overwhelming, the damage is already done and the impending flare is around the corner. The deep-wrenching, grinding pain in my joints from working over-time can make tears sting my eyes.

If you know in advance that company is coming you can better prepare by taking scheduled rest breaks to accommodate the list of things that you desire to do for that company.

However, if you have a surprise visitor and you’re not feeling up to it then you need to pray that your visitor will understand if you can’t sit up and chat like they might like. (or don’t answer the door, especially if they are a people who may make you worse. You know the type. Your health is vital.)

I just had company for two weeks. The good news is that that company helped out with the day-to-day chores and activities. I was still able to rest and pace myself.  But not all company is low-key and understanding to the fight we Fibros deal with daily.

Education is key. Communication is extremely important. I send links to my mother and older children often so they can stay informed and (hopefully) be compassionate.

Do it for yourself.  Do it for them.

So this final week before Christmas I pray you will find peace and rest. That you will pace yourself and be blessed by the visitors that pass through your home.

And maybe even bake some cookies!

Merry Christmas and God Bless!

Christmas with Fibromyalgia

Fibromyalgia and the Hustle and Bustle of Christmas

In the midst of the hustle and bustle of Christmas I have definitely been reminded by my body that I have Fibromyalgia. There have been countless times I wish I didn’t-probably every moment of the day-because there is so much I want to do and so much I cannot do, anymore.

It seems this holiday season is whizzing by in a blink of an eye! Try as I might to slow down and rest (as I should with this condition) I find that the busyness of the season has prevented me from doing so.

Car trips to visit loved ones wreak havoc on my body and within 24 hours I can feel the pain just creeping into my body deeper and deeper. The joys of the visit can get clouded by the reality of the pain.

I also love to wrap presents! I get so excited picking out the paper and the ribbons and getting everything all ready! I think I enjoy giving presents more than I enjoy receiving them! The problem I have found since I developed this condition is that repetitious movements and Fibromyalgia do not mix. The constant moving of my hand from cutting with the scissors, the bending over the table to cut the paper, the holding of the pen as I write out all my Christmas cards seem to just wreak havoc on my body!

It is so hard to comprehend that something which I have always loved and enjoyed can cause me so much pain now. It is at these thoughts that I try to see the positives in my life.

It’s easy to write about pacing yourself, but doing it is another matter entirely. Some days it seems that my life just cannot afford the luxury of pacing myself and resting.

As I write this I am looking at the beauty of my Christmas tree. I am enjoying the crackling of the fire. (Thank you loving daughter for making it for me!) I am trying to savor the quieter moments. I am trying to rest but my body just screams from the pain in my joints and inner being. Instead of focusing on the pain, I am wanting to see the blessings of rest by taking the time to look around me.

I want to encourage you to take time this holiday season to enjoy the little things around you. Take time to enjoy the twinkling lights and listen to some Christmas carols. If driving does not bother you, go tour a lighted neighborhood or holiday lights display. You’ll be glad you did!

My prayer is that these ideas will give you strength through the pain-that it will encourage you. I know it has for me!

Many Christmas blessings from my house to yours!

Living Daily with Chronic Invisible Illness

Fibromyalgia, Stress and Fibro-fog

Fibromyalgia, stress and Fibro-fog do not go hand-in-hand. When I awoke this morning I knew what kind of day I was going to have because my brain was not thinking clearly. I immediately set out to stay calm, move slowly, follow a list, and keep my day as structured and orderly as possible.

I think the enemy had other plans! Just after prayer time this morning with the children, I set out to give them their morning chore list, complete with expectations. I let them all know I had some computer work and bills that needed my attention this morning while those chores were being accomplished.

With that done, I went downstairs, put some beef bones and seasonings on simmer for veggie-beef soup tonight, sat at my desk and began my list of things to do. At that point, I struggled with remembering what I was supposed to be writing on my list.

Sidebar:

I have a large family. The youngest is nine and I home-school year-round. We always take December off to enjoy the holiday season and all it has to offer. Chores are a daily task that need to be done-school or not! My kiddos know what to do with (usually) minimal overseeing and so I feel free to pay bills, make phone calls, lesson plan or work on this blog during chore time. I have a general idea of how long the chores take, so when they get done sooner than expected my assumption is:

A) It did not get done

B) It was not done correctly or completely

C) It was not done neatly

D) Squabbling occurred (What??? You mean my children do not always get along and work together as one unit???)

Uh, no. Unfortunately their sin nature seems to take hold more often than not…

End of Sidebar.

Needless to say, “D” is what was happening while I was trying to remember what to put on my list. Today was one of those days where I was truly not able to remember much, save the order that I had given them of our day.

Suddenly my world was turned upside-down when that “order” got changed. Not once, not twice, but yes….more than my brain could manage and I snapped. I could not think. My anxiety began to rise. I was breathing heavy. Why? Because at that moment everything I have ever read about Fibro-fog and stress and how to handle it seemed to have been written for me. What’s worse is even as I thought that, I could not remember any of it. I am even struggling to write this now. My brain is not with it.

I had to leave what I had not even begun to do to handle the various issues that seemed to be so utterly important to those who demanded my attention.

My father has a saying. He would say, “You can’t put a square peg in a round hole without forcing it.” In other words, If the plans are being changed, but it is not going to be a smooth transition, don’t force it. I have headed that advise more than I could count. Except today. I had too many people telling me how it was going to be (and why), my brain could not compute most of it, and I told them to do whatever they saw fit and I walked upstairs. I tried to calm myself down with calmer breathing when it all began again as I was followed up the stairs.

So, here I sit, venting on whoever is reading this. My brain is pretty much dead, I feel exhausted from the last hour and I cannot even recall what my original plan for the day even was.

Thankfully, I had already ordered supplies from a construction company who will be dropping my order off this afternoon for our daughter’s new whelping house and office for her AKC Dachshund business she is expanding. Part of the changes that were made this  morning that just “had” to occur means my son may no longer be home for the drywall when it arrives. *Sigh*

People who suffer from Fibromyalgia cannot take mornings like the one I just had without repercussions.  And guess what…??? It is not even noon, yet.  I am still trying to make sense of it all and trying to collect the pieces of my day and allow my brain to function.

I chose to write in the hopes it would allow me a way to think clearly. Has it? I will have to get back to you on that one.

Stress and Fibro-fog….a horrible combination!

The symptoms of Fibro-fog can range from mild to severe. They often vary from day-to-day. Some symptoms of Fibro-fog may include:

Trouble with Words – Difficulty recalling words or names, the use of incorrect words, trouble holding conversations, understanding conversations, and expressing thoughts.

Short-term Memory Problems – Forgetfulness, difficulty remembering where you put things or remembering plans, forgetting what you are doing, unable to recall what was heard or read.

Trouble Concentrating – Easily distracted, trouble processing information, inability to pay attention to more than one thing at a time, unable to complete a task.

Trouble with Simple Math – Difficulty performing simple math, the processes of math, transposing numbers.

Experiencing Fibro-fog can be frustrating and stressful. The brain fog can be almost as cumbersome as the pain and fatigue. Your anxiety can go through the roof when you cannot concentrate or you get distracted and suddenly you begin to mix up words and you are unable to form a complete sentence. The anxiety you experience during these times can be stressful in itself and cause a Fibro-flare.

Tips to Cope with Fibro-Fog

So, what can you do when you are feeling confused and forgetful? The most important thing to do is to STAY CALM. When your mental capabilities are dimmed by Fibro-fog, it  can be truly scary. But it can also let you know it is time to slow down. If you are around stressful people or a stressful situation, remove yourself as soon a possible.

Here are some tips to help cope with Fibro-fog:

Rest – Respect your body’s need for rest. Overactivity (physical or mental) can worsen cognitive functions, so it may be important to take frequent rest breaks. Frequent rest breaks can actually help prevent Fibro-fog and other flare-ups associated with Fibromyalgia.

Follow a Routine – Establish a daily routine for simple tasks. Doing things in a predictable manner will help reduce Fibro-fog. Make a schedule and stick to it.

Stay Organized – Find a system that helps you stay on top of things. Create daily to-do lists. Use a planner to keep track of appointments. Use a weekly pill-box to keep track of medications, if you take them.

De-Clutter – A cluttered environment can be overwhelming and distracting, cause additional stress and make brain fog worse. Organize your home so that everything has a designated place.

Avoid Multi-Tasking – Focus on one thing at a time. It is harder to concentrate when you’re trying to do too much at once.

Avoid Over-Stimulation – Since one of the causes of Fibro-fog is over stimulation, find ways to limit sensory input. For example, if you are hypersensitive to noise, move to a quiet place to avoid distractions.

De-Stress – Stress may cause Fibro-fog to worsen. You can learn to relax by listening to soothing music and breathing deeply.

Exercise Regularly – Exercise not only improves blood flow, but also helps improve sleep, which can help alleviate some of the cognitive difficulties associated with Fibromyalgia. Yes, it truly helps.

Improve Sleep – Lack of restorative sleep can cause and exacerbate cognitive problems. Go to bed at the same time each night and get up at the same time, too.

I hope this helps!

 

Living Daily with Chronic Invisible Illness

The Faces of Fibromyalgia

Today I attended a wake of a dear friend’s husband.  His death was unexpected and hit the family very hard. The line for the wake was wrapped around the building and it took 3 hours to get to the front to show your respects.

As I stood in that line I began to notice all the people. Some faces were familiar while others were not. Some people were speaking quietly while others were laughing. Some were smiling while others were complacent. But none looked as if they were in dire pain.

It was then that I realized how the faces of people are like the faces of Fibromyalgia; meaning that to look at one’s face you cannot tell who has Fibro and who does not.

I was chatting with a friend in the line and she commented on how good I looked. That always makes me chuckle because I had often thought if I looked as I really feel, I would scare the pucky out of someone!

At the same time I thought it was a good thing I DID NOT look like I felt or people would wonder how I was even walking at all!

I guess what I’m saying is that it is a good thing Fibromyalgia does not effect our outward appearance. It was good to know I “wear my pain” well. (At least in public. At home may be different…).

On the flip side, however, is our inner self. You know, the one who feels the pain. The one who deals with the reality of their current situation every day. The one that no one seems to understand.  The one we wish we could forget. The one who feels robbed of their former self and inwardly wants to scream that it is not fair! (and maybe does).

If you have Fibromyalgia and are reading this then you can relate. If you know someone who suffers from this dreaded, misunderstood condition, then study up on it. Pray for them. Pray for how you can help them. Let them know you care.  (Provided you do care. Because if you don’t, it’ll only bring added stress into their life and all Fibros know that stress is a HUGE factor for Flare-ups!)

The faces of Fibromyalgia are everywhere going unnoticed and seemingly uncared about.

The pain is real.

So are the people dealing with that pain…24 hours a day, 7 days a week.

Fibromyalgia won’t kill you, it just feels like it will.

Fibromyalgia awareness is important.  People must be educated about this condition.

So as you look around at the sea of faces throughout your day, know that someone in that crowd may have Fibromyalgia. But if you already know someone who has it, then take time to see the pain in their eyes while they are (trying to) smiling.

A gentle hug of understanding is all they may need.

Loved one sees pain while others see smile

God bless!

 

Christmas with Fibromyalgia

Fibro-Flare and the Holidays

I am in the midst of a Fibro-Flare. It started this past Sunday with a migraine that completely wiped me out. It was a total down day! The week before was Thanksgiving and I think my schedule I had made last week for me to follow was way too hard on me. My body could not take it and I just crashed out.

All day Monday I could scarcely move, but I did get up and attend to my day, albeit, slow. I sat quietly with my daughters as we made Christmas Cards and Gift Tags. It was a fun way to spend the day, but sitting up that long always wreaks havoc on me! I fought the migraine and lost…so most of the afternoon is a bit of a blur because migraines cause my mind to lose parts of time due to the pain.

I do vaguely remember attempting the stairs up from the basement only to immediately fall onto the sofa upstairs in the hopes of stopping the bone pain. One of my daughter’s came over to me and smiled and said, “Don’t cry Mommy,  it’ll be okay.” Was I crying? I then realized tears were slowly cascading down my face. (I try not to cry in front of the children from my pain, but apparently that day the pain was too much for me as I lay myself down hoping for it all to stop).

Unfortunately, Tuesday was no better. I ended up laying down at 1pm with more Ibuprofen and a heating pad hoping to find some relief from the excruciating, deep, joint pain that literally made my bones hurt to the inner core. Not to mention the migraine (that I thought was going away) had come back with a vengeance! I even woke up in the night from the pounding.

By Wednesday and I awoke the usual way…slow, stiff, and road kill-like. I was in great need to begin preparing for holiday company on Friday! With that thought my adrenaline tried to kick in and I managed to get two meals done and an ice cream cake made in our basement kitchen while (trying to) organizing our downstairs. I rested and napped two times and by 5pm, my hips had locked up and I sank into the recliner hoping for relief. Fifteen minutes later and I was slowly starting again for a birthday dinner I had been preparing to serve that evening for a dear family friend.

Thursday I began to feel not as draggy and lethargic, but rested just the same. I wrapped some presents for relatives in other states and got them boxed up so could get them out the next day before company arrived!

Friday I woke up at 3:30am from a text that our oldest daughter was in labor and at the hospital almost two hours away! WOOT! WOOT! Our first Grandson! Needless to say, I stayed awake to pray and get updates. She actually delivered at 3:18pm and blessed us with a beautiful, healthy baby boy!! During those twelve hours I prayed a lot for our daughter, brought packages to the post office, prayed some more, stopped at the store for some provisions, came home and prayed with the children and helped get ready for company!

Today, I am writing this and battling my mind about my week. I am constantly in some sort of pain, stiff or run-over feeling, but wanted you all to know that you gotta keep on-keeping on! Sometimes it seems that my life is too busy and maybe it is. But it is the life the Lord has given to me and I love everyone in it! I struggle with myself all the time; The planning, re-planning, adjusting to life, changing the plan…again, and just living! I am learning to say “NO” to some things…really, I am. But it is not easy. Can anyone relate?

Well, it is Christmastime and December is busy! That is my excuse….today, anyway. But after all, I am now a Grandmother and what is better than that??

My Kitty under the tree.

Tis the season to be jolly!

Gentle hugs to you!!

Christmas with Fibromyalgia, Fibromyalgia Pain

The Christmas Season with Fibromyalgia

I don’t know about you, but when Thanksgiving is over my thoughts immediately turn to the Christmas Season!! The day after Thanksgiving I love turning my house from Pumpkins and Autumn Leaves to Nutcrackers and Reindeer!! Having Fibromyalgia means the transformation takes me a bit longer to achieve then it once did…but I still love to decorate for the holidays-pain or not! (no pain, now that would be a gift!!)

Christmas at my house last year…hoping for a duplication of its beauty this year!
Christmas decorations now take me up to three days to make happen. (Which is not like I used to be at all!!) Once upon a time I used to spend my Thanksgiving evening taking down autumn and putting up (and even decorating) the tree that night. Before we moved three years ago, I even had one tree in five different rooms all decorated in themes! But this was before I was diagnosed with Fibromyalgia. It is hard, sometimes, not to think back to those days…I was a go-getter! Sun-up to way after dark I was a very busy, busy bee! I was like the Energizer Bunny!

But, alas, those days are over! Now it takes me days to accomplish what I once did…or I don’t even attempt it! I have really had to alter my life and my persona. The latter is the most difficult! I think I fight with my former self more than I’d care to admit. Then, on the days when I am just too terribly hurting to even care, I feel guilty for not “pushing” myself.  I try to tell myself that a day of rest is helping me…but I was never one to rest before the Fibro! Now, resting has become a part of my (daily…if I can) routine…on most days! (However, I still suffer from my old “push-push” mentality which causes me to crash big-time. It’s a vicious cycle.)

The migraines I suffer from now can knock me out for hours-and that is with many Ibuprofen. On those days I can’t even think clearly, and if I don’t catch it before it really kicks in, I find I don’t even care what’s going on, I just hit the pillow and block the lights! It is an awful thing to suffer from migraines and to my thinking, Fibro-migraines are the worst! But none are fun to live through.

So here I am, the weekend after Thanksgiving with visions of Sugar-plums dancing through my head…and my house is (almost) completely decorated (did I hear applause)…and I awoke with what appears to be the beginnings of a migraine…complete with intensely painful joints with pain that radiates and runs deep into my bones. UGH!

I think my Thanksgiving week has caught up with me. Perhaps I did not rest enough? Perhaps I over did the menu…again? Perhaps I still suffer from being haunted by my old self and I keep trying to fool myself into thinking I am not really sick. Perhaps my Will to do things makes me suffer more. I guess that is not a bad trait, but I do hate to hurt as badly as I do right now. And since I’ve been writing this, I am beginning to feel like this migraine is about to run away with me…I must go find the Ibuprofen…before it’s to late-

So, Happy Christmas decorating! May your home bring you pleasure this holiday season without too much pain!

 

**Follow me this holiday season as I write about my real day-to-day goings-on. After all, this is a blog about the “Realities of Living with Fibromyalgia Every Day” and I will do my best to stay current on the happenings at my house!

God Bless!

Cooking with Fibromyalgia, Living Daily with Chronic Invisible Illness

Thanksgiving with Fibromyalgia 

Happy Thanksgiving!

Whew! It’s been quite a week. This morning I awoke feeling like a brick building had collapsed on top of me. I felt as if I had to will each brick off of me before I could even get up. My body is sore and achey.  It feels like the flu…only it’s not. That is a good thing, right? Well, the flu eventually leaves…and Fibro does not.

However, today is Thanksgiving! I have not even begun the day and that “power of positive thinking” thing has had to set in! (Or at least I am trying to get it to set in!)

Today us not about the meal…although these past few days of baking and cooking would lead one to believe it is!

Today is about being thankful.  I know, I know. Every day you are to feel thankful! Of course! But Thanksgiving Day is when we set aside a time to truly acknowledge what we are thankful for.

I admit that when you are in some form of constant pain, it may be difficult to find a thankful heart and attitude.

I have been there! Some days I still find myself there…

But today I must see the gifts,  the little treasures that God has given to me. Those hidden gems that we become used to seeing and may even take for granted.

So today I awoke hurting terribly.  The blessing in that is I hurt out of love. I hurt from the sacrifice from my desire to give to my family on a holiday as I always used to do. I hurt more because I love more. It’s a paradox!

Today I will pace myself as I have tried to do all week. We will eat turkey and all the trimmings! Tonight I will collapse in pain, but what good and loving memories I will have made!

For me it is worth it!

So as my day is just beginning, and you find yourself reading this, say a prayer for me. Say a prayer for all the Fibro sufferers out there who long to be back to their former selves and give to their families as they once did. Pray we can have a good Thanksgiving Day and see the blessings all around us!

Happy Thanksgiving from one Fibro warrior to another!…and God Bless!

Living Daily with Chronic Invisible Illness

Wednesday of Thanksgiving week with Fibromyalgia

Well, yesterday was Wednesday of my Thanksgiving week. I have Fibromyalgia and I feel like I have it…

I have been baking and preparing for Thanksgiving all week and I tried to complete the list I had made earlier in the week to keep me in track.

In conjunction with a turkey craft and Jell-o mold, I also made an apple pie with my two youngest daughters. My hands just cannot peel the apples as they once could! The reality is that I had to stop several times for the burning and aching in my hands to subside before continuing. (I could tell my body had had about all it was going to take! However, there was more to do!)

I then helped my daughter roll out the crust and mix the ingredients together.  Daughter number 2 (actually, she is number 10 and the last blessing of children I received!) helped me cut out the leaf shapes for the top of the pie.

I also made two coffee cakes, homemade refried beans as well as a Mexican chicken casserole for our Wednesday night dinner. I did not get to the two casseroles for our Thanksgiving Day meal, however. By 2pm I sank onto the bed for a much-needed rest. Approximately 23 minutes later, I was trying my best to pick up my body and keep going.

The positives in my day were the children who were feeling better and the fire my son built-in our double-sided fireplace that morning.

I just love a fireplace fire! It is super cozy and inviting. I also find it to be soothing and peaceful. That alone helped me through my day.

I fell asleep like a rock only to toss and turn all night.  It is then that this got written…it is my hope that if you are a Fibro sufferer, that your holiday baking week goes a bit better than mine! I still have more to do to see the Thanksgiving table be as picturesque as it can be! That will  (hopefully) occur today!

Happy Thanksgiving and happy meal prep!

Living Daily with Chronic Invisible Illness

Fibro Tuesday and Thanksgiving Pumpkin Pie Baking

Well, It is Tuesday afternoon of Thanksgiving week and I just finished baking 6 pumpkin pies, one coconut cream and one vanilla cream pie. My “helpers” have been fighting a virus that causes a headache and makes them lethargic and seems to last about 24 hours so I baked all the pies, save the vanilla cream that my oldest daughter at home helped with.  (Her 24 hour bug ended yesterday).

I was fortunate to have had my oldest son at home help me make (all) the pie crusts before he left for work at the bank and his college classes early this morning. The recipe I have used for years makes enough for 20 pie crusts that are freezable. With the size of our family, that is a much-needed recipe!!! It makes the most amazing, tender, flaky pie crusts, too! All that mixing is taxing on my joints and I was super excited when he said he’d help!

My pies turned out pretty good and my daughter even made her Beau a sweet potato pie!

Earlier today, I had my younger “headachers” sit and string cranberries and popcorn for our Christmas tree that will be going up (Lord willing) this coming weekend. Stringing cranberries and popcorn is a family tradition during Thanksgiving week. It gives the kiddos something to do, while keeping us all together while baking. All those luscious looking cranberries made me begin to crave some cranberry bread and so I spontaneously made some!  (As I type this, I can smell it baking.)

I also made the home-made cranberry sauce and cut up the onions and celery for the stuffing.

I admit this was not how I envisioned my week, nor is it how I wrote out my list for the week!  Normally, I have too much help and today I was on my own. That makes it rougher on a Fibro body. At one point I thought I was not doing too bad considering…but then I remembered I had taken Motrin at 9am for a migraine I felt coming on like a train speeding out of control…I guess it took the edge off because I had forgotten I took it.  However, when I stopped to rest, the moment was gone and my body just screamed at me! The pains came from some deep, dark, recessed area of my joints and even my bones ached.

I have decided to make the casserole that is on my list for today on Thanksgiving morning instead and just take it easy the rest of the day. With the time change, it gets dark in the Midwest around 4:30pm. That makes for a longer evening with the family, which I adore. I love this time of year!!

I hope your holiday baking is not too taxing on you!

God Bless!

Living Daily with Chronic Invisible Illness

Fibro Monday Thanksgiving Pumpkins

Today is Monday of Thanksgiving week and I’ve been cooking down pumpkins! Cooking and Fibromyalgia don’t often go together!!  Good thing I had my handy list available to keep me on track! (Fibro-fog!) That list said I was to cook down pumpkins today for pie! Did I succeed? Well, 4 pumpkins gave their lives for our Thanksgiving table, yielding enough for 5 pies plus about 10 more throughout the coming year which was frozen in 3 cup increments!

I’ll admit I conked out about 2pm for an hour. My whole body just went “slump!” See, I have 2 ovens but one is downstairs and the other is on the main level.  Carrying trays of pumpkin up and down, plus bending over to put them in and pull them out is rough on a Fibro body! All my helpers were outside raking leaves into piles (and jumping in them) and so I was on my own! But that is okay because we will be having the freshest pumpkin pies on our street!

Tomorrow’s list is much longer and this Fibro Momma needs to get rested up to bake 8 pies tomorrow!

May you and I get a good night’s rest…

 

 

Cooking with Fibromyalgia

Enjoying Thanksgiving with Fibromyalgia

So, the Thanksgiving holiday is upon us! Let’s talk about how to make it a success when your dealing with Fibromyalgia!

What makes a holiday? Family? Food? Friends?

What makes it Thanksgiving? Family? Food? Friends? More food?

It goes without saying that food is the number one word associated with Thanksgiving. Turkey, mashed potatoes, stuffing, cranberry sauce, dinner rolls, pumpkin pie…these have become the norm on most American’s Thanksgiving tables.

But who makes it all?

Are you fortunate to have been invited to a relative or friends home to eat of the bounty that someone else has made? Or are you hosting your own Thanksgiving gathering? Will you be making the whole meal?

Okay, okay…no more questions…

Here is how my coming week will look, based on previous years:

I still have six children at home under age 22. My other kiddos and their spouses will be joining us, save our Navy son who will be spending the holiday in Norway. (yes, I am sad…)

I am a lister. That means I thrive on making lists of things to do and accomplishing each task and then drawing a line through it when its been completed. Thanksgiving week is no exception!

I start by making the menu, including breakfast and dessert items. Next, I make separate pages with Monday, Tuesday, Wednesday and Thanksgiving Day written at the top of each one.

Under the day I write what needs to be done on each given day. This helps me to budget my time and allot for rest periods. I also decide what will be made from “scratch” and what will be store-bought.

For example, in my previous life (pre-Fibro) I always made homemade rolls. (Of course, I always made homemade breads and rolls throughout the year, so making them on Thanksgiving was not anything new to my family!) This is one area I “cheat” on by purchasing a bag of frozen dinner roll dough and put to rise early in the day and bake up 30 minutes prior to eating. No one really pays that close of attention and I saved myself a lot of work! (and pain).

If you’re a stuffing snob and simply must make it from scratch, then plan to bake the bread on Monday, bake the cornbread on Tuesday, slice the veggies and boil the eggs on Wednesday, and assemble on Thanksgiving. Otherwise just add some sautéed onions and celery to a box of stuffing mix and call it good!

If your making a casserole, prepare it a couple of days in advance and place in the fridge. Open a can of cranberry sauce! If you always made that from scratch and you don’t find the constant stirring tediously painful, go for it!

Ask for help! Most children want to help, anyway! Washing the dishes can be a HUGE help, whether you have Fibro or not!

I admit it. I am a pumpkin pie snob! I was raised on cooking down a freshly gutted pumpkin and pureeing it like apple sauce and either using right away or freezing for later pies. (Thanks, Mom!) Because of this I simply CANNOT eat a canned pumpkin pie. It’s awful. (Please, no hate emails!!!)

Because of this, I cook down my pumpkins the week before Thanksgiving and freeze in 3 cup increments for future pies. (to date we have cooked down enough for 32 pies throughout the year.) I still see some pumpkins in a line-up over there…

Here is my Thanksgiving cooking and baking schedule:

Thursday the week before Thanksgiving: ~take out turkey and place in fridge to defrost  ~Cook down pumpkins, puree’, bag and freeze

Friday: ~Make dough for 9 pies and freeze (or buy Pillsbury)

Saturday or Sunday: ~Make a meal which involves cornbread, save leftover cornbread and refrigerate-I did this Friday this year (Or buy Stove-top)

Monday: ~Take pumpkin puree’ out of the freezer  ~Clean house and REST-UP…(I’m gonna need it!)

Tuesday: ~Make pie crusts with recipe for 20 pies ~Cut up celery and onion for stuffing, boil eggs, lay out sliced bread to harden…REST ~Bake pumpkin pies with help (large family=5 pumpkin pies-you gotta have leftovers on pumpkin pie!!!)…REST~cook down cranberries, add sugar and thickener, let cool and refrigerate-my girls love to do this! (or buy a can of whole berry sauce) ~Mix together ingredients for hash brown casserole, which my girls also love to make, then refrigerate…REST ~Bake 1 Coconut cream pie-daughter helps, 1 Vanilla cream pie, another daughter helps and (if I can manage it), 1 Chocolate cream pie-you guessed it-another daughter helps…REST (and take some Motrin from all that stirring you helped do to save the mixtures from scorching!!) ~Plan to get take out for dinner that night-well deserved!

Wednesday: ~Bake 1 Apple pie-yes another daughter helps! ~Make Jell-o dessert (with help!)…REST ~Make Cranberry coffee cake-(my specialty)!  ~Make Cinnamon coffee cake-(me again!)…REST ~Assemble stuffing with help…REST(take Motrin to get you through…)  ~Make frozen pizza for dinner!!

Thanksgiving Day:  ~Inject 22 pound bird with herb-butter mixture and bake-(with much-needed help from son)…REST  ~let frozen bread rolls rise  ~make mashed potatoes-(wait, I have lots of peelers…now where are they???)…REST   ~bake stuffing  ~Cook other veggies   ~EAT and EAT and then REST (Have someone else wash those dishes!) Actually, I buy the disposable foil baking containers at Sam’s. They make cleanup a breeze! (Another Fibro trick…)

Okay, I am blessed with many “helpers” it is true. But that still is a lot of prep work and this body needs periodic REST breaks! I don’t mind taking the Motrin during times like this because it is not always like this. I also know that by Friday I will need some serious REST!

Please note that everything I do is for my husband and children. The pain can be intense, but I want them to have the best memories they possibly can-especially for the holidays! My silent tears when I finally collapse at night is a small price to pay for special memories. Just saying.

If you have to do all the cooking alone, I urge you to simplify!! Also, Please remember to pace yourself and also remember that Thanksgiving is a time to reflect on the things you are truly thankful for. The meal should be secondary!

Cook out of love and from your heart! Don’t be a slave to the cooking! If someone criticizes your pie crust or stuffing because it is store-bought, then send them packing! Do only what you can and understand if you over-do it you’ll pay the consequences! I try not to let my list overwhelm me. (Just re-reading this overwhelms me!! haha)

And always, always remember to

Image result for thanksgiving fibro sayings

May the Lord truly Bless your Thanksgiving Day with love and family!

God Bless-

~The Fibro Momma of Ten

Fibromyalgia Family Life, Living Daily with Chronic Invisible Illness

Fibromyalgia Flare-up

What causes a Fibromyalgia flare up? That is something I have been trying to figure out for over 3 years now.

So, tonight at 8:30 p.m. my body decided to completely give out on me.

No advanced warning…no preview of coming attractions… just flat-out locked up and said “I’m done!”

I probably should have expected a flare to rear its ugly head about this time. I am learning how my body works and how it responds to different things that I do…and the past three days have been non-stop.

What does one do when “life” does not allow a person with Fibromyalgia to rest or take it slow as every article that a Fibro reads tells them to do?

Now, that is a daunting question.

This past weekend was very busy as our family plays bluegrass music and we had to travel over an hour and a half to play a music engagement. The playing part is fun! The drive, however, is not fun for this Fibro body. As I could have guessed, I crashed as soon as we all returned home and I tried to take it easy on Monday, but homeschooling has its demands!

Tuesday would have been fine except I had to drive over an hour and a half into the city to take my son to have a procedure done at the hospital. The procedure itself took only 15 minutes. However, the hour and a half prior to the appointment check-in, the hour delay that we sat waiting, and the extra hour after post-procedure was taxing on my body.

Of course, on the way back home I decided to make a couple of stops as I live out in the country and some stores were rather conveniently located to me at that time, so we stopped in for a few holiday odds and ends for the Thanksgiving meal table.

(This was probably not the best choice, but none-the-less, it is what I chose to do. I have found that it is these little spontaneous choices that wreak the most havoc on my body!)

It was rather fitting, when I woke Wednesday morning to find it raining. That alone can send a Fibro into a flare, and that certainly did not help what was about to take place in my body hours later. That “24-48 hour delayed reaction” thing that drives us Fibros out of our minds!

In our home-school, we are finishing up a Civil War unit study that will end with a puppet play of what the kiddos have learned as well as a home-cooked southern meal like they would have served during that time era. (The kiddos are cooking it themselves with me as overseer.) The play is to take place tomorrow so we had many fine-tunings that needed to be done today, including setting the beans to soak for the meal tomorrow.

Lots of fun! But, very busy!

As I was finishing up some of those odds and ends, my hips began to ache something fierce. Then they felt bruised. Then incredibly sensitive and my clothes actually hurt to wear.  My gums and teeth began to hurt. I now have a sore in my nose that won’t stop bothering me. Since I began to type this, my joints are locking up and typing is becoming cumbersome.

Yes, this is the beginning of a flare. A flare from my weekend, my trip to the city,  shopping and well, just living life!

How long will this flare last? Hopefully not too long. My last flare of this magnitude lasted 4 or 5 days. In one week it’ll be the day before Thanksgiving.  I will need all my strength to make the meal as lovely as my old self used to do. I admit I set that bar pretty high for myself. I love the holidays! I am the type who has their menu list, a list of all the items that need to be purchased to make the menu happen, the list of what I need to do on Monday, Tuesday, and Wednesday of Thanksgiving week. I have it all broken down to help me to remember what to do and how to do it.

Now, I have always been this way, but I have found that these lists currently help me to remember what to do. In my past life- meaning pre Fibromyalgia- that list was more of a guideline to help my children know what I was planning that day so we could all work together!

My children still get in there and help me, and I try to keep things light and cheerful. (We even play Christmas music while we do our Thanksgiving baking!) But, I am not that same person that I used to be as I have to stop and rest, or stop and sit, or just take a little break.

The homemade dinner rolls that I used to make from scratch and work and twist with my hands to make elaborately beautiful rosebud rolls would absolutely hurt me to the point that I couldn’t even brush my teeth that night if I went back to making those!

Little things like that I’ve had to simplify. So now I buy the orange bag of Frozen bread rolls that I set out on Thanksgiving morning and let rise all day and bake to a wonderful golden brown and serve! Most people don’t realize I didn’t bake them, but I know. I should be thankful that they’re available to me, right?

Of course, right!

So now I pray that the kiddos puppet play goes well tomorrow.  The meal too, which (will) consist of ham and beans, cornbread and molasses cookies all served on tin plates by candlelight in a (as close as possible) true Civil War-like way and that this Momma will not be recliner bound!

Homeschooling at its finest!

From one Fibro to another-Gentle Hugs and may all your holiday baking be easy on your body!

Fibromyalgia and your Heart

Living Daily with Fibromyalgia

Fibromyalgia sucks lolly-pops. (That is a much nicer way to say something crass.) And it really does! Like, really, really, really bad. When you are dealing with the pain that befalls you on any given day, it is overwhelming! The pain of Fibromyalgia is indescribable!

Here I sit after my second rest of the day. My morning began with the usual stiffness and sore, achey feeling. I moved around like my battery needed to be charged desperately! I felt very mechanical. But, for those who read and follow this blog, you know that this is nothing new! However, today is my son’s birthday. I wanted to make the day enjoyable for him and I set out to do just that!

We had a nice leisurely breakfast and a lovely lunch while playing board games-we just enjoyed the day! However, here I sit at 3:30 in the afternoon waiting for those pains to subside before I begin again.

The birthday boy has taken his siblings outside for a ping-pong tournament in the shed and so I decided to rest a bit.

What my son doesn’t realize as he lovingly tries to give me these opportunities to rest, is that my older daughter and I have been planning a surprise birthday party for him tomorrow evening. 23 young people will be hosted on our property in honor of his 17th. Because it is a surprise, preparations cannot be done out in the open! Therefore, things such as the baking of a cake, the gatherings for the bonfire, and the purchasing of the items for the hot dog roast must be done secretively. Many of this has been done gradually over the last few days and (hopefully) has gone unnoticed. I have been buzzing around for days overextending myself out of love!

~Sidebar~                                               The weather in the midwest is extremely bizarre this time of year. Less than 5 days ago the temperatures were in the upper 20s for the lows with highs in the 40s. Now, here I am with lows in the upper 60s and highs in the mid-70s today. A major thunderstorm is due tonight and 3 days from now the temps are supposed to drop yet again. The constant up and down and back and forth in the weather wreaks havoc on a Fibro body!                                           ~End of Sidebar~

Okay, so I have six out of ten children under the age of 22 still living at home. Some days it is very difficult to continue on doing as I have always done. I want each of them to have happy and pleasant memories of their childhood with an active mom; a mom who can be the mom like I used to be!

Sometimes, the reality of my present situation is something I do not wish to face.

Yesterday was a relatively decent day for me. 2 days ago, whatever I did must have caused my extreme issues today. It gets very tiring trying to remember what I did two days ago to cause me the pain and I’m in 2 days later. My brain does not allow me to remember a lot of the mundane, everyday things I do. Things like cleaning and moving this or that, vacuuming air vents, cleaning ceiling fans. All that hurts as I do it and hurts worse later.  But, hey, it needs to be done and I love to do those things! My body, however, does not.

I try to make a mental note saying I shouldn’t do this or that because it will cause me problems tomorrow or the next day. But my brain has let me down. I’ve tried to keep notes and write things in a journal. It does help, but that, too, is hard to remember to do.

Throw weather into the mix and you have the makings for some intense pain days!

Oh, I just want to be normal again!

To think and remember like I used to.

To be active and play like I used to.

To enjoy the little things like I used to.

But, alas, I must accept the new normal. There are days, weeks even, when I feel I have whole-heartedly accepted this.

And then….there are moments like this…

Why do I write this to you? To let you know that I am only human. I have real feelings, real concerns, real frustrations and real anxieties.

I also have a real faith, a real love for my family and a real love of life. Pain and all.

It’s just some days are more painful than others. Some days are harder than others to get through. But each day is a day that the Lord has given to us.

My pain is constant, but so is my faith in God.

Please know that I take Fibromyalgia seriously. I know what it has done to me, to my family and to my life.

Do you find that pacing helps? How do you handle the normal struggles in your  day? Do you suffer from the lack of support from loved ones?

Pray about these issues and lift them up to a heavenly God! He hears your cry!

My day is not yet over…and neither is my pain. The smiles on my kiddos faces is enough to see me through. I’ve been blessed with a great family and I do not take that lightly!

So, Happy birthday, son! I’d do it all again for you because I love you!

Blessings and gentle hugs!

The ~FibroMomofTen~

 

Fibromyalgia Pain, Living Daily with Chronic Invisible Illness

Living Through Daily Fibromyalgia Pain

Fibromyalgia pain is a constant, never-ending type of pain that Fibros battle daily with no reprieve in sight.

Here is a post about part of a “normal” day in the life of a Fibro-Momma…

*******************

So I just came inside from a forced walk in our pasture with my dog. I say forced, not because the weather was unagreeable, nor because the pasture was unpleasant to walk in, but forced because I literally had to make myself get out there and force my body to walk.

I usually do not share how I’m feeling with others. Those close to me can see the pain in my eyes as I maneuver my way through my day. But, if someone were to stop me and ask me how I was feeling at any given moment, if I were to reply, they would wonder why I was standing up at all!

Currently my hips are throbbing from the walk. A burny, intense deep-seeded, yet on the surface type of pain.

While I was walking, my hips felt like they were just dangling off the joints. My back was screaming at me for rest and it felt like my ribcage was coming apart. My elbows and wrists were pulsating  from the constant shuffling of the leash back and forth as I walked my dog. And I don’t have a large dog! I have a Dachshund!

My Dachshund

The pain that I’ve described is nothing new for me. My Fibromyalgia started several years ago and has just become a part of my life.

Mornings are the worst and it’s all I can do just to get out of bed. As the cool weather begins to roll in it makes it even harder to get up due to the pains! I literally have to will myself out of bed and deal with the morning routine of “Let the morning pain begin!”

As a home school mother of four students still at home to teach, that alone demands my attention! And I love what I do! But again, the pain that I feel everyday is something that I have learned to adjust to and I try my best to get through the days-pain and all.

Today, we did school lessons and afterward I began to attack the pile of mending that has been calling my name for weeks. I sat before my sewing machine for 1-1/2 hours while I mended this garment and fixed that one. It is something that needed to be done and something I’ve always enjoyed! However, my hips and back were not happy with me for sitting in that chair! The reason for my walk this evening was to help keep my joints moving. Sometimes it seems backwards to go through so much pain because the walk ultimately causes me more pain tomorrow! But I want to stay healthy, and keep my heart healthy, and exercise is vital!

I am so thankful for the land that we live on and the ability to have the opportunity to walk in our beautiful grassy pasture on a wonderful autumn day. Our land brings me a comfort that I cannot describe! Even through the pain it helps me and brings me some sort of peace.

The view from our pasture.

Autumn is my favorite season and I love to hear the leaves crunch under my feet as I walk through our yard! I love the way the air smells. I also love the way the sky looks and the colors on the trees! 

So, here I am, in my usual state of intense pain, trying to describe how I really feel all while (doing my best) to keep a positive outlook. 

Currently, I’d have to say I feel like a crumpled piece of paper which can never be laid smooth again.  (Sigh)

A hot shower is before me and then I will settle into bed in the hopes that the pain will not cause tears to cloud my eyes as the pains radiate throughout my very being; praying that sleep will find me and stay with me. That I will not toss and turn as the pains awaken me and keep me in a semi-awake state til morning.

I do love my life! I have had to learn to embrace the way my life currently is and roll with it. It took a long time for that to happen, too. The days go by one by one. I try to pace myself and live each day the best I can. My husband and children are understanding and helpful! That alone is a blessing!

If you are suffering from Fibromyalgia, Lupus or another Chronic Invisible Illness, keep communications up with your loved ones. Send them to websites like this one and countless others so they can begin to understand this is a real battle that we face. Let them see that you are not alone in your pain. Help them to be able to help you.

So, from one Fibro to another, Gentle hugs and happy autumn!

 

Fibromyalgia Pain, Living Daily with Chronic Invisible Illness

Fibromyalgia, Beta Blockers and PVC Heart Arrhythmia

I have Fibromyalgia. I also have been diagnosed with a PVC Heart Arrhythmia and I have learned how the Beta Blockers affect me, both for the good and the not-so-good.

I have been taking a Beta Blocker for over six weeks now after a bout with my heart where it would not stop missing beats continually for over six hours. Off to the ER I went! Since I have Fibromyalgia, the hospital stay alone caused me problems, but the Stress Test is what did me in!

I remember telling the Cardiologist that my heart would not be the reason I could not complete the Stress Test (wink, wink) it would be my joints due to the Fibro!

My famous last words were accurate, because as I was running on the treadmill, up a steady incline, becoming more inclined every 10 seconds, my joints began to burn and scream at me. I mentioned this (casually…while huffing and puffing) to the Cardiologist as he nicely asked me if I could give him “one more minute”…

which…

I…did…

give…him…

Needless to say, the next day I hurt in places I did not know could hurt! That 24-48 Hour Fibromyalgia delay thing! Plus, I ended up with a Migraine to boot!

So, my heart tests all showed a PVC Heart Arrhythmia and a Beta Blocker was prescribed.

After I got home from the hospital, I crashed out. I mean, my body literally went through this “I need to sleep” thing, and I did exactly that! Part of it was due to the Fibromyalgia. My body just cannot take that kind of physical beating! The other part was due to the Beta Blockers. Three days later and I still felt like my body was trying to catch up with itself.

On the BB, certain things that once frustrated me, now did not affect me. Certain people who used to push my buttons, so-to-speak, it was now like “Whatever.” I could not get angry to save my soul. This is a good thing, right??? Well, yes. But when the room is quiet and the dog suddenly barks, normally I would jump and my heart would start racing as my adrenaline kicked in. The problem was when that did happen, my heart tried to start racing and its like it couldn’t. I would wait for the feelings of adrenaline and it did not come.

It was very weird.

It took a few weeks for my body to adjust, which it did do, to a degree.

Another thing was I began to feel agitated and short-fused and did not realize how bad it was until one of my children pointed it out. I researched the side effects and Bingo! that was one of them. In fact there were numerous side effects…

That research lead me to understand that the meds had also been making me feel very depressed. I did not know much about depression and did not realize that was what I was experiencing.  Actually, I thought it was just a recent version of me. Like, okay, so I am very mopey and cannot seem to find anything to smile about.

I did not realize the medication was making me feel this way. I have never felt before like these meds made me feel. EVER. The feeling of being overwhelmed at the tiniest of things, feeling like it would take forever to get through the day, feelings of immense sadness for no reason….all…day…long. Like everything was a monumental task.

Skip to the checkup where my Cardiologist decides to lower my dose of BB and take me off the potassium and magnesium. That was two weeks ago and all the agitation and depression symptoms are GONE and (thankfully) my heart is still staying in rhythm!

Now, It is hard for me to actually remember how awful I really felt on those meds, save the regular heart beats!

So, how would I sum this up?

Take the Beta Blockers if your doctor says you need them. People don’t die from a PVC Heart Arrhythmia, but the skipping of beats causes anxiety and sleeplessness and you don’t want that! Take the minimum amount possible to ease the symptoms and speak with your doctor if you experience any abnormal symptoms.

One SUPER-BIG-BONUS for me was the Beta Blockers did keep my migraines away! My last one was in the hospital and I just had my first one now that I am dosed down. I went six weeks without one and that was wonderful!

There are pros and cons to meds. Personally, I don’t like taking medicine, not unless the benefit out-weighs the risk, I would rather “get through it” some other way. But, the BB were something I needed to get my heart back in step and I learned quite a bit about myself in the process.

One thing I do know is that I have Fibromyalgia. I hurt daily. Some days it is all I can do to survive the pain. But I am a SURVIVOR!

The good news is that the bad days come…and go.

The good days also come…and go.

But to coin the phrase…

It is another day. And it may be a rough one. The storms may roll in-Literally-Causing extreme joint pain and fatigue, making it difficult to bear it. But it will pass. Stay positive!!

Gentle Hugs and God Bless You!

Living Daily with Chronic Invisible Illness

Fibromyalgia and Extreme Weather Changes Don’t Mix 

What is a major FIBRO day? Well, today is, of course! Why? Because today’s episode is due to a change in the weather. 

Rain, wind, and storms make for a very blustery fall day and it is what I awoke to today.

I knew what type of weather it was before my eyes opened. The pressure in my chest, the pain in my joints.  The overall amazingly sore muscles. It feels like you’ve got the flu…

Even your scalp hurts. You wiggle your toes and the pains shoot up to your knees. And Oh! Those knees! I should have known last night this was coming because my knees were screaming at me with every movement!

So, because of the 30 degree drop in 2.5 hours, you feel like all your bones have been dislocated. Like the scarecrow laying on the yellow brick road all in pieces…

Can anyone else relate?

Today is a MAJOR Fibro day! The kind when you want (someone else) to light a fire and allow you to curl up by it with a good book and rest.

Maybe your day will allow that! Maybe you have someone there with you who will give your body what it needs. Count your blessings if you do!

But, perhaps your alone. Just the idea of getting up to use the bathroom seems overwhelming, let alone make a fire! Ha! Once you pander down the hallway, just find a TVfire video and stream it! Turn the volume up and enjoy the crackily sounds.  Then curl up with a book! It might not be the same thing, but it may offer a way to bring some rest.

Who cooks on these sort of Fibro days?

This is where you plan on a good day to plan for a bad day.

Canned soups and saltines are an option…whether you live alone or not. It’s a good fall back and something to always keep on hand!

Just promise you’ll eat! Pain or not!

So here is to all my fellow Fibros…no matter what the weather is in your neck of the woods! Gentle hugs your way on this most stormy and blustery of autumn days yet!

 

Living Daily with Chronic Invisible Illness

Fibromyalgia and Exercise

There are many forms of exercise for Fibro sufferers. I have had inquiries as to whether or not the pool therapy and the myofascial massage I tried this past summer has benefited me.

In all honesty, I would have to say no. The pool therapy made my normal daily routine more cumbersome to maneuver through. After six weeks of determining to see it through (which I did), I felt it did not help my pain levels at all and even made me feel more debilitated.

As to the myofascial massage, I feel that it was beneficial to my over-all daily life, but took quite a bit out of my days with driving 30 minutes to get there and then 30 minutes home. It was also difficult to make it a normal part of my weekly life when “life” itself can be hard enough. The Graston tools they used on me did bring me a form of pain release, but so does my Body Back Buddy. I use that several times each week for trigger point release. Just be sure to drink lots of water when using as it releases built-up toxins into your body that need to be flushed away as soon as you use it.

A diagram of the many different trigger points on one’s back

With that said, I do believe the myofascial message had its benefits. Keep in mind that each person responds to each treatment differently and what did not work for me, may work for you and vise-versa.

For example, walking around my property is a benefit to me. It not only offers exercise, but also brings me a peace and comfort that going to the gym or therapist could never do. Likewise, my Schwinn AirDyne bike I like to use in the cold-weather months, offers me the comforts of home, the flexibility of time and the added bonus of being easy to get to.

The bottom line is that we all need to keep moving. Even on extremely painful days and even if it’s only five minutes. But we do need to set a schedule for walking or whatever form of exercise we choose to do, and keep at it.

I have heard that Pilates can be beneficial to Fibro sufferers. I have not exhausted that one, yet. If you have insight to this, please feel free to leave a comment about your experience. I may try it in the future!

All in all, we cannot become stagnant in our daily activities. I would suggest speaking with your Primary Care Physician or Rheumotologist about a recommendation for you. Perhaps there is a form of Physical Therapy that would work for you. Just keep the communications open with your doctor!

Have a blessed day and gentle hugs!

 

Living Daily with Chronic Invisible Illness

Stress and Fibromyalgia

If you suffer from Fibromyalgia, stress can be a contributing factor to flares. How do you handle stress? Well, that has been an ongoing investigation for this Momma!

I am a homeschooling mother with six children still living at home, four still being educated by me, and four already out of the house. Stress just comes with the territory! For years I have been handling these various ages, hormone levels with both male and female, pre-pubescent and full-swing hormones, all running a muck! Not to mention normal daily family issues, unusual daily family issues, as well as teaching them (to work together) for years. We are a work in progress! We have in no way “arrived.”

How do I handle those stressful times and still keep my body from going through a flare?

When I find the answer, I will let you know! Ha, ha.

Seriously, though, I don’t have a cut and dry answer, but what I do have is insight to trial and error. I have been dealing with many stressful issues for years just keeping up with the routine we call life.

Before my body decided to betray me, I was a very organized, routined person. I had schedules and deadlines and structure. I made lists and abided by them. Now, I cannot find the lists I write. Actually, I cannot remember what I was going to write down before I can find the paper that had the list on it. Worse, I cannot remember starting the list in the first place, let alone finding it to write on. Post-it Notes have one or two items on them pasted all over the place and I find myself staring at them trying to remember what I could possibly have been thinking when I wrote them.

My brain suffers from Fibro-fog often and some days are really bad. After each lesson, I write down the page number of the book or topic we are reading in my teacher’s log so I can pick up where we left off the next day. On those days that the bookmark falls out and my teacher’s log goes missing is a sad day indeed…although my children may say the opposite…

On those days when my brain was working more clearly, I made a list of things to do so when my brain is NOT working, I can refer to that and keep the education going! Thankfully, I have good kiddos who are strong learners and can work independently, if needed! I even have a housecleaning list because on the really bad Fibro-fog days, certain routined things escape me.

Now, all these things that I have mentioned can cause stress on your body. When your mind cannot recollect the normal things it is accustomed to, it causes stress on your body. When you can barely move from the joint pain, it causes stress on your body. Stress does not have to be caused by another person, although that can be a HUGE stressy factor.

I laugh out loud when I read other blogs or medical sites that say to cut out the people who cause you stress and throw you into a flare! Sometimes that is a relative or close friend. Then what? Yeah…that is a topic for a later post! Ha!

The answer to these stress-problems is to pace yourself.

This goes against my Type-A personality. I fight this all the time!

Do a little. Rest. Do a little more. Rest. etc. etc. Some days it seems like I barely get anything done. But…..if I don’t pace myself-even on the good days-I will have more bad days. Did you hear that? (Of course you didn’t. You are reading this. So read this out-loud…)

“If I don’t pace myself-even on the good days-I will have more bad days.”

This is where the pacing goes against the inward desire to do-do-do!

Today, I planted mums. I bought 7 mums and with the help of one of my children, I dug four holes, and then bent down and planted all of the mums. Guess what? I cannot move hardly at all as I write this. My hips are screaming at me. Should I have stopped at three holes? Maybe only planted a couple and did the rest over a period of a few days? My personality says,

“No-way! Do it NOW! Get it DONE! Rest LATER!!”

But what I should have been thinking was, “This can wait until another day when someone else can plant these. After all, if I had not bought them, they would still be sitting outside the store in the same containers waiting to be watered and so they can sit here another day or two.” But which scene wins out? Well, the OLD way of thinking, of course!

No. No. No. We must create the NEW way of thinking. This, my friend, is the single-most hardest part of living with the constant, continual, never-ending, perpetually chronic body pain called FIBROMYALGIA!

You need to say good-bye to your old self. Yes, it is a sort of mourning. It may even take you months to let it go. But when you do, it is quite freeing!

Now you can embrace the NEW you. The I-CAN-do this (albeit a little slower) you.  The, “My stress is not as bad as it once was now that I am pacing myself,” you.

It is reformatting the way we have thought for years…I am a work in progress. If I overdo and allow the stress to hurl me into a flare, I can learn from it so I do not repeat the pattern. If stressful people or stressful situations throw me into a flare, I have to learn from that, too.

Oh, but what if you don’t remember the incident (Fibro-fog). My answer is to keep a journal. This way, you can recall what you did and help yourself to manage it better the next time.

Yes, I have Fibromyalgia. Yes, on varying levels, I hurt 24/7. Yes, I can learn to pace myself. Yes, I can reduce the stress on my body by pacing. Yes, I can switch gears and reprogram my reactions to things. Yes, I can rest without feeling guilty. I am a warrior! I’ve got this!

Fall at my house…my happy place!
Fibromyalgia Family Life, Living Daily with Chronic Invisible Illness

Fibromyalgia and the Guilt Complex

You may have read on other blogs about how some people with Fibromyalgia lovingly tell friends and family that they cannot attend an event or host a gathering and bow-out “gracefully.” In this post I we will speak about the realities of the guilt involved by doing this and its repercussions on your health. There is no need for a guilt complex!

Fact: Life does not stop just because you have a chronic pain disorder.

This is true. Invitations still arrive in the mail (or on social media) and you still have to decide if it’s in your best interest to attend. You may even take into account the possibility that you might encounter certain people who could (perhaps; most assuredly) throw you into a flare…you know the ones. (I am sure someone just crossed your mind when you read that…)

Scenario #1: You RSVP with the full intention to go. You over-do it the day before and “Viola!” just like that, you have to cancel. Does the person hosting the event know about your condition and understand your need to cancel at the last-minute? Are they supportive? Or worse, do they even care??? Do you care if they care? Do you feel guilty about your decision? Maybe you decide to decline the invite from the beginning because you “just know” that you won’t feel up to it when the day arrives.

Scenario #2: You RSVP and the day arrives; you make yourself go. After all, you never go out. Your friends and family have made mention of their concern that you’ve become reclused. Are you going because you want to go or because you’re trying to convince others you’re not as bad as they think you are? Are you still in denial about your condition? Are you trying to convince yourself you’re not as bad as you think???

Scenario #3: You have accepted that this is the life the Lord has given to you. You understand that you have limitations and that pacing is vital to your health and outlook. You RSVP with the added note saying you will do your best to attend, but until the day of, you won’t know for sure. The day comes and your joints are super-achey, almost burning (is it raining??) and you decide to make an appearance to keep your own moral boosted. You see old friends and “that one person” whom you don’t let get to you (self-preservation). You go home and collapse, but have a decent memory to add to your collection.

Which scenario most fits your life?

Fact: Family is harder to handle than friends.

Why is this a fact? Because families have high expectations. They remember the you that you were and have a hard time (believing, dealing with) the fact that you have changed. Of course, no one asks to be in constant pain every moment of everyday. Change is inevitable. That is a fact.

Do family members understand when you must cancel? What about those certain family members whose lives seemingly revolve around themselves? An invite may be to come over just “because”….”You just have to come over and (help, be with) me!” “I know you have plans today (to rest because you need to rest), but I need you more.” Then you feel guilty. You think, maybe I am being selfish. He (or she) does need help with (whatever it is). It won’t hurt to go over there. Let’s not talk about how “over there” may mean a longer drive than you are physically able to achieve…and the after-effects will keep you down the next day.

Maybe it is not too far to travel. Maybe it is just going next door. But you know your body needs to rest…

Is that selfish? No. It is NOT being selfish. If you choose to not rest and go do whatever, where ever, then you must understand that it’ll be at a cost to you. A cost to your health. A cost to your pain. Is it worth it?

What about the invites that come from family for parties, showers or weddings? Are they as easy to dismiss?

Again, you can only do what you feel capable of doing. You cannot let guilt over take you. That, my friend will help you meet your demise.

Fact: It is hard to say “No.”

Yes, for many people this is a fact. I am one of them. I am a doer who likes to do. I am a cleaner who likes to clean. I am a gardener who likes to garden. I am a chef who likes to cook. I am a parent who likes to nurture. I am a teacher who likes to teach. I am a wife who likes to be one. I am….I am…I am…I am a person with Fibromyalgia. I still am all those persons above, only different. I am still me, only different. I have to say “No” now when before I always said “Yes!” I am my worst enemy and my only friend. Everyday is a battle. Saying “No” does not define me. It releases me. It allows me to become a better person with my condition. I cannot allow this new way of living to make me feel guilt.

Do you feel you can “bow-out” of an invitation gracefully? Why or why not? With understanding of your chronic health condition(s) comes freedom. You are not alone. You can fight this. You MUST fight this. Family will always be family. Friends will come and friends will go, but true friends see the pain in your eyes while you’re finding that lost smile of yesterday. You have one life to live. Do it by choosing your battles and pacing yourself. Don’t let the disease define you. Don’t let others make you feel guilty for saying “No.”

~~~~~~~~

If this post has blessed you, please share it with others! We Fibros need to stick together!

Living Daily with Chronic Invisible Illness

Finding the Blessings in Fibromyalgia

Is it possible to see Fibromyalgia as a blessing??? Well, if you have been diagnosed with this horrific illness, I am sure that is the last adjective you would use to describe it.

As a stay-at-home-mother I can assure you that you need to find the good in the not-so-good on most days! Children crying, schedules to maintain, broken dish(es), must needed potty breaks (for you!!!), living in daily pain, cooking, cleaning, etc….it may be hard to find joy. But the triumphs are when you get beyond the superficial daily grind and realize there are blessings to be found in the little things.  YOUR outlook is vital, not only to yourself, but to those around you. 

That is the blessing of this disease. Did you just read the word blessing associated with Fibromyalgia??

Um, why, yes, you read it correctly. 

You must find the good in the bad or you will go crazy. 

The blessing is that Fibro won’t kill you, though it feels like it will at times. 

The blessing is that the flare won’t last, even though when your in the middle of one you can’t imagine that it will go away. 

The blessing is when the flare is over you cannot really remember how bad it truly was…until it occurs again. (But that is another story.)

Those are blessings. 

Now, when I am in the middle of a full-swing flare I am not going to tell you I say to myself, “Wow, this pain is really intense and such a blessing!”

On the contrary,  I can assure you. But when your living day to day with chronic pain, it’s what you think that defines you. The phrase “there is power of positive thinking” may be a bit cliche, but it does work!

Try it and see if you can name a few blessings to your chronic pain condition(s) and let the “Power of Positive Thinking” reign in your mind and life!

Blessings from one Fibro to another!

Fibromyalgia and your Heart, Living Daily with Chronic Invisible Illness

Heart Arrhythmia and Autoimmune Disorders

Heart Arrhythmia and Autoimmune Disorders-Do they go hand-in-hand?

For the past two weeks I have been resting after being admitted to the hospital for heart palpitations. Needless to say, it was a little bit scary to have your ticker out of joint. For me, it began at noon on a Wednesday and was still occurring at 6:00pm the same day when I decided I probably needed to have a doctor take a looksie.

After the ER doctor ran an EKG it was found that I had some irregularities on the test. My blood tests had come back as nothing life threatening or immediate, but the doctor felt I needed to be on a watch and therefore, I was transferred to a larger hospital and kept overnight.

The ER heart monitor was replaced with a hospital version of the same thing once I got to my room. More sticky stuff on my body…more sticky stuff removed…I awaited for the morning where an Eco-cardiogram was to be done-with continued heart palpitations regularly throughout the night.  It turned out that the outcome of the Eco would determine the next test. The Cardiologist came in, introduced himself and explained everything that was ordered and what I should expect.

Once the Eco results were finally in, it was decided that a Stress test was needed. More heart pics, IV dyes and a treadmill set at “uphill” from the onset. (Okay guys, remember that I DO have Fibromyalgia and extensive exercise is gonna kill my joints and make me suffer the next day.) Nonetheless, I was a trooper! (or so they said) and did everything as I was told, like a good girl! They got their test and pictures and I got out of breath and joint pain! I was then wheeled back to my room. More waiting. More palpitations.

Enter the Cardiologist once more! The good news was I did not have to have a procedure called a heart-cath. My heart was strong, he said, and what I needed to be on was a medicine called a Beta-blocker to help regulate my heart beats. Two hours after receiving the first dose, my heart palpitations ceased and my heart felt much better. The doctor said what I have is called a PVC Heart Arrhythmia.

Sounds bad, but basically, it is not life threatening, just needs to be monitored and I need to be medicated…and stay one more night to be sure the dose he prescribed is adequate and the palpitations stay away.

Well, true to my normal Fibro history-self, I awoke the next morning with the beginnings of a Migraine and severe joint pain. Yep, from the treadmill test. And I was told that I was only authorized to be given Tylenol. Not good for me since Ibuprofen is the only med able to kick this monster out of the park. I took the 650mg of Tylenol, thinking it was all I was going to get and then I lovingly expressed my thoughts to the nurse, who passed them along to the doctor, who authorized Motrin, which had to be sent to the Pharmacy, which had to be filled and then brought to my room. Meaning two hours and one ****of a Migraine later I was able to take the Ibuprofen. Five hours later, my head pain was waning. It seriously was an awful thing to live through. Now, had I had that Motrin from the get go….

The Beta-blocker was working after tweaking the dose and the doctor decided I could go home. Yippee! Also, A heart monitor was being ordered for me to wear for one month to make sure my heart was not doing something behind the scenes that I was not feeling due to the meds.

Now, I am not going to lie and say that I was doing okay mentally. Any problems with one’s heart will cause anxiety, which leads to a more rapid heart beat and staying calm is vital.  So I asked the doctor if he thought there was any correlation to the Fibromyalgia, Lupus or other autoimmune issues I have and my heart arrhythmia. He said that certain heart issues from Fibromyalgia and Lupus can happen, but at this time he did not feel there to be a connection, but for me to see my Rheumatologist and to update him, let him run other tests, if needed, and go from there.

So, is there a connection between this heart arrhythmia and my auto-immune issues? Maybe. My next appointment with the Rheumatologist will (hopefully) shed a broader light on this subject.

In the meantime, I am taking this new med and my heart is staying more regular then it used to be. I feel very “chilled-out” and the meds keep my heart from allowing my adrenaline to make it beat faster, which is a very weird feeling. It’s like stress can’t rile me up because my heart won’t speed up.

I am now wired for sound with this heart monitor attached to me for about a month. It is not too cumbersome…really…

So, as I try to take it easy I guess the thought is it (the meds) will help me to not over-do the body. We’ll see.

Living Daily with Chronic Invisible Illness

The Realities of Daily Living with Fibromyalgia

Okay, so let’s talk about the realities of having Fibromyalgia or another chronic pain disease. Few websites or blogs will touch on this subject. I will do my best to do so. See, I am a daily Fibromyalgia warrior. I fight the battle of pain every day and it is a very real issue for me. I want you to know you are not alone.

Fibros already know that just waking up in the morning can be overwhelming. That is when the positive thoughts need to kick in. You know what I mean…But how about when you cannot remember what day it is, what you have to do that day, or what you even did yesterday? Not the best way to start the day, but it does happen.

So, now your awake and you begin to move. After the grunts and groans and the electric-like shocks stop flowing in like the tide, you need to tell your brain to begin those ever-needed positive thoughts that say…”Get up”.

Once you determine in your mind you need to get up, you begin the process. Now you are sitting up at the edge of your bed. More pain. Places that should never feel pain, has pain. You say to yourself that is too early to feel this way. You pause and look out the window, willing the day to just float you through it. Then your feet touch the floor. (If you are like me, this is a painful morning occurrence. On go the flip-flops, Crocs or slippers.)

Now that you have your barrings, you paddle your way to the bathroom. Here is where no one actually discusses how hard it is to pee sitting down mainly because they know how hard it is going to be to get back up and “potty talk” is not discussed openly on most blogs. (This is assuming most of my readers are female. I am a sit-down female and I would not want to assume what a male with Fibro goes through at this point. Just saying.)

All Fibros, both male and female do know the deep-seeded feelings of painful joints and mornings are the WORST. We do not take toilet usage for granted! No.

Okay, so that part is over and we move on to regular morning rituals like teeth brushing, hair brushing, (and wiping out the sink that is laden with your once beautifully attached hair of only moments ago), makeup if you wear it, donning sunscreen liberally on all exposed areas, and (if your arms can handle it) you braid or pull your hair up in a ponytail or bun. Forget the curling iron…You then breathe a sigh as the pain in your shoulder joints begin to wind down their screaming. You turn to look at the reflection in the mirror and ask yourself “Why me?” (Please do not go there. I fight this, too, but to keep on keeping on, you MUST have a positive outlook. Just turn off the light and smile as you walk out.)

(If you are blessed with Lupus as well as Fibromyalgia and you have a butterfly rash across your cheeks, tell yourself you are beautiful and walk out of the bathroom. Besides, you are beautiful! This is the life that the Lord Jesus himself has allowed you to have-We must make the most out of it and beauty is found within, anyway, right?)


Did I say having a positive outlook would be easy? No, I did not.

So, how about getting dressed? God forbid the clothes we put on the first time don’t fit right or your brain suddenly kicks in and you remember that you had an appointment today so a different outfit is needed. Getting dressed once can be a challenge, but twice? Here comes more pain…

Sidebar: I began Physical Therapy by way of the pool last summer. Besides the fact that it did not help but actually added to my daily pain; the challenge wasn’t in the exercise, but the changing into and out of the swimsuit and back into the clothes each session. It was like showering 2x a day and that, my friend, is a challenge all its own. End of Sidebar.

So now we are dressed and ready to begin our day. (Is the coffee made yet???)

In my home I have several children of various ages that are being home educated by me, myself and I. I love being a stay-at-home mom! However, since my Fibromyalgia began in 2015, I have had to make some major adjustments!

Breakfasts and lunches have been simplified to allow for me to move a bit more slowly through the morning routine. Did I just say routine? Ha! The word routine got lost the day I was diagnosed! Fortunately for me, my children are beginning to see that my condition does in fact affect our life and can make our days a variable. This once routined (there’s that word again) Mother has now resorted to lists and Post-it-Notes to stay on track. It is a whole new way of life. (Who said you can’t teach an old dog new tricks???)

Does standing bother you? How about sitting? How about driving? How about walking? For me, it is all of the above. Some days I need to rest-A LOT-other days I can make it through without that nap I so desperately needed the day before.

We know cooking is a chore for the most healthy person, but with Fibro it presents a larger challenge to one’s day. If I use all my energy in the morning on the evening meal, it’s a bust day for me! Easy meals are a must! I have one word for you where cooking is concerned…

Ready?

No, that is not the word. The word is…

SIMPLIFY.

One word. Huge challenge. But it can be done.

Moment by moment, it can be done.


Now your day is over and you are exhausted. Maybe you got to rest, maybe you did not. Maybe you had to drive or maybe you stayed home. Regardless, it’s now time for bed.

You made yourself shower in the hopes the heat will help alleviate the pain. Your children are asleep and you look over at your husband, smile and sigh. (Here is the next thing most Fibro blogs tip-toe around.) You want to be intimate with your husband like you used to. Full of energy and abandon and joint pain free. You can, but not until you get to “that point” when you forget the joint pain. It’s a beautiful thing to “forget” the pain, but getting there is a painful thing indeed, just moving all those joints! (If your husband is compassionate to the new physical you, like mine, then praise the Lord and ask for more energy!! haha  If he is not, my heart hurts for you. Let him read this blog to get a better understanding that you are not alone and that this is a REAL condition!-and pray. Seriously, pray.)

The intimacy between you and your spouse is never to be left behind-pain or no pain.

It is what makes a marriage strong.

It is what makes a marriage whole.

It is what makes a marriage complete.

Perhaps you can’t be intimate as often as you used to. (Hey, we don’t stay 25 forever…) Or maybe you are 25. (Well, I cannot relate since I’m in my 40’s, but Fibro-pain is Fibro-pain no matter how old you are.) Just keep at the intimacy! When it is all over and the pain comes roaring back, (which it always does), you will have the wonderful memory of the connection between you and your husband to fill your mind with positive thoughts to fall asleep on.

Once sleep arrives (for some it takes longer than others), my prayer for you is that you will sleep well and wake up with renewed thoughts for a positive outlook on your day as the cycle begins again tomorrow.

And…24-48 hours later when you can hardly walk and are too stiff and sore to function, always remember that wonderful night with your husband and be thankful for the 24-48 hours earlier…

It is a vicious cycle of unrelenting pain. Yes, it is. The cycle is called life. The cycle is called living.

You CAN live with Fibromyalgia.

 And don’t forget to Simplify!

~The Fibro Momma of Ten

Living Daily with Chronic Invisible Illness

Fibro-Fog and Remembering what you Forgot

Fibro-fog is a real battle. It is not necessarily a daily fight for me, but when it does occur, it is quite hard to handle.

As I write this, I am suffering from Fibro-fog. The words just evaporate from my mind faster than I can think them. I feel like I am chasing word rabbits through the muddy fields of my mind. I literally can see the words hop away and I cannot remember what they were.

Trying to have a conversation on days like this can be amusing to the listener as I stutter out my thoughts, but it is a real struggle to my inward self. It makes me realize how bad this battle truly is for me and unfortunately how so out of my control it is for me as well. I find myself becoming more reclused and separated on these days, which I know is not good.

Oh, and forget grocery shopping, returning calls or paying bills on these days. I have tried doing these things when I am having a foggy day and then I don’t remember that I did them.

Or worse-when I thought I did them, only to find out I never did.

In the past three months, I have “forgotten” to pay some bills that I swear I did pay. When I realize that I did not pay them-days later-I get very shaken up because the reality of my situation hits me like a ton of bricks. Then I must face the truth about my health that I often times like to pretend is not really happening.

I have had people phone me on Fibro-fog days and I purposely will not answer the call because I know I won’t remember talking to them. Of course, I won’t remember to call them back, either. It’s a vicious cycle.

This is where Post-it-Notes come into play. My kids gave me a bunch of them at Christmas. I do my best to use them (if I can remember where I put them when I am remembering what I need to write down!). My cabinets are dotted with squares of colored papers. Who to call back, what is needed at the store., etc. I also date them. Days can go by in a sea of endless blur and it will surprise you how these dates multiply quickly.

On days when I am thinking more clearly I will make a list of things I need to do, bills that are due, groceries that need to be bought, etc. I have also found that writing down what I did do helps me to remember what was done. Sounds crazy, but it is my life. There are times when I really don’t remember that I did something and by writing down what I did and the date that I did it, helps me immensely.

In our home-school, I have a list of school oriented things we do on my painful foggy days when the regular routine just won’t work with my brain. Educational videos, worksheet reinforcements and student busy work all help me when my brain cannot follow one train of thought and those rabbits start hopping!

For Fibros, once again, it is all about restructuring this new way of living and trying to create a new version of our old self. We are the ones who have a hard time handling the life change and I am no exception! I battle change regularly as well.

The daily pain struggles of Fibromyalgia are hard enough, but when it is so bad that Fibro-fog kicks in, it makes for rougher sailing through one’s day. When you’re having a painful flare day and Fibro-fog day at the same time, it is almost impossible to survive.

But all of us Fibro-warriors know that flares come and go and so do the foggy days. After all…

Tomorrow is Another Day!

 

Living Daily with Chronic Invisible Illness

Fibromyalgia and Perseverance

Do you have Fibromyalgia, Lupus, Chronic Fatigue Syndrome or another chronic invisible illness? Perhaps you have an over-lap condition to Lupus like, Sjogren’s Syndrome, Mixed Connective Tissue Disease, Raynaud’s Phenomenon, Rheumatoid Arthritis, or Scleroderma?

If you have been diagnosed with any of these conditions, please know you are not alone.

When I was first diagnosed with Fibromyalgia I had a difficult time with all the information I read. Trying to process it all was overwhelming at first, to say the least. Truth is, I still struggle with it. I am currently in the midst of a Fibro flare. Day five, actually. I wake up wondering if it will be over today. Each day makes me feel lethargic and even more incredibly sore than usual. I am so tired and worn out! My joints *h*U*r*T* with every movement. My head continues to throb in the front and the back. Ibuprofen barely takes the edge off of any of it. It is a major drag, to say the least.

However, I still have to live life daily, flare or not. I only go through my day much… S-L-O-W-E-R. I still need to cook. I still need to do laundry. I still need to (remember) to pay bills. I still need to take care of my family. I still….still…still….

Now, I do read about Fibromyalgia and Lupus as often as I can. Especially when I have a new symptom. It helps me to know that others are going through this, yet, at the same time, makes me sad at the thought. I blame almost every pain I have on the Fibro because it probably is the Fibro causing the pain.

The hardest thing you will find to digest is the acceptance that you actually have what the doctors have said, what the blood tests show and what you are reading about. When you read about the condition and all the symptoms of the condition and you can relate to them-that’s rough.

I still have days where I feel alone in this new battle I find myself in. Some days I want to withdraw from others and recluse myself. Sometimes, I even feel sorry for myself. What???? Hey, I am only human. Unless a person actually suffers from this awful disease they have NO idea how the person with the disease feels. They can read about it, but unless THEY are experiencing it, they have NO understanding of what it means to feel this way. Just saying.

Yes, I have Fibromyalgia. Yes, I suffer daily. Yes, I implement the power of positive thinking daily. Yes, it does not always work! Yes, I am a fighter! Yes, I can DO this! And yes, so can YOU!

Let us persevere in this new race of chronic pain!

We are the champions, my friend!

Fibromyalgia Migraines, Fibromyalgia Pain, Living Daily with Fibromyalgia

24-48 Hour Fibromyalgia Delayed Reaction

Today I suffered the typical what I call “The 24-48 Hour Fibromyalgia Delayed Reaction.” That delay is when our body reacts to what we did 24-48 hours before-hand. It’s a part of Fibro that is frustrating. Most Fibros will get used to this happening to their bodies and learn to live through it.

What does one react to? Well, it took me over a year to figure this out by keeping a journal of foods I ate, things I did, how the weather was everyday, stresses I encountered, chores I did, etc. Journaling helped me to understand how my body reacted as I became more “in-tune” to myself and my body.  It was quite the process, but worth it in the end. Sometimes we remember right away that we raked the yard two days earlier and the “flare” is the delayed response to that. But sometimes it is not that simple.

This flare I find myself in today, I fear, is self-inflicted from my Saturday of pruning when my back was hunched over pruning seedlings that did not belong in my flower beds. (see the post from August 5, 2017)

Yesterday was a very rainy Sunday (and we know how much rain and Fibro goes together *note of sarcasm*) and my family and I went to church to play music for a Homecoming Celebration. (My husband and children play in our family’s Bluegrass Band most weekends and we usually drive within a radius of 200 miles for each event. I’ve done the “Mom” thing over the years. ie; get them to lessons when needed, make sure their clothing colors are coordinated and clean-and still fit-haha, take the calls for bookings, keep our website’s schedule updated, pack food for the journey, make CD covers, take pictures, etc.)

Anyway, by the time we got halfway home, I had a migraine befall me out of nowhere-joint encompassing and all! I felt nauseous and knew there was no going back! I downed ibuprofen with a bunch of water and asked my son to rub my neck and shoulders as my husband continued to drive us safely home. Once there, I collapsed on our bed, covered up my face, and lay there trying to ride it out. Next came a very hot shower as my body began to respond to the meds.

This morning my lower back and hips decided to lock up on me less than twenty minutes into my morning. It was so intense that it brought me to my knees. Literally. I needed to enlist the assistance of two children just to help me up. I have tried moving from chair to bed and back again, doing school lessons with a heating pad in less than comfortable surroundings. Even ibuprofen has not eased the pain today or enabled me to move much at all.  I also feel very lethargic and groggy.

I tell you this to help you understand that this flare began last night with the migraine and continues on into today. How long will it continue? Well, that is the fun thing about Fibromyalgia! (note the positive tone in that last sentence???) You never know how long a flare will last, but what you do know is it won’t last forever!

So, was it the rainy weather? The Saturday chores? The long Sunday drive to play music? Or all of the above? Could this be a Lupus flare and not just a Fibro one? I do run a low-grade temp with this type of whole-body flare-ups. But, regardless, it’s here and I have to live through it. For all you Fibros out there-newly diagnosed or seasoned-it is your outlook that matters. I lean more on God on these rough days and try to have a positive attitude.

Just know, you can get through the flares and you are not alone!!

Living Daily with Chronic Invisible Illness

Another Day with Fibromyalgia

Today was another “normal” day with Fibromyalgia. What does that mean, “normal”? It means we live through the day doing what needs to be done, resting when we need to rest and muddling through the stormy sea of unending pain that seems to always be our constant companion.

Yes, today was another day with Fibromyalgia. It also was Saturday. I awoke in the usual way with stiff joints and painful feet, but when that groggy feeling over swept me after only an hour of being awake, I knew immediately that it meant I would be fighting of enemy of fatigue today.

Due to this, I set out to keep myself busy so I could try to have some productivity in my day before my body completely gave out on me. What did I do? Well, I decided to clean the windows in my kitchen, which lead to hosing off the screens, which lead to scrubbing the storm door with Clorox Gel Bleach spray and a scrub brush. (We have the type of storm door with a rough texture which causes all the dirt and grime to just cling to it. The gel cleaner works amazingly well with not much effort to achieve a bright white door!)

Needless to say, I had to pause continuously to keep the pain from over-taking me. For those of you who are following this blog, you know I like to clean. It just makes me feel good on the inside and the satisfaction of a job well done is quite therapeutic, at least for me. Also, having things neat and orderly actually helps with Fibro-fog! However, the down side is the way deep cleaning makes me feel physically. It is a terrible clash of the chemical makeup I have and my newfound health problems! Nonetheless, I pressed forward until I could go no further. Then I rested and began again.

Everyone who was at home today had their own chores to be done. My husband and two oldest sons were building onto our storage shed and were consumed with this project or I may have enlisted their help in the window washing mood I found myself in. Our oldest daughter was working on her AKC Dachshund business she runs on our property, posting new puppy pictures to her website. Another daughter was ironing her father’s work shirts for the week and the two youngest were playing with their dolls in a playhouse designed of sheets and a picnic table. I am blessed with a large family and wonderful husband! There are no words to describe how great they all are!

When I finally took a rest from the joint pain from the up and down window washing motion, my dachshund daughter had finished her updates and had made everyone lunch!!

(**smiles all around!!**)

The pain and fatigue were overwhelming on my body as I ate and I finally gave in to a nap. An hour later I had to pull myself up. I was still…so…tired…so…sore…so…groggy…so…hurting…and needing to keep moving because I did not want to sleep my day away.

I slowly walked through the kitchen and grabbed my pruning shears, asked my pie-baking daughter to come help me and headed to the overgrown flower bed where I proceeded to cut back all those Red Bud trees that seem to appear overnight where they don’t belong.

My hands and a pair of shears are not a good combination, but nevertheless, I began as my daughter raked them all into a pile and hauled them to a deep section of our wooded property.

Then, it began to rain. It was a light rain, but I could feel it deep in my joints. The pain consumed me but I was determined to finish before it came down harder. The pain won. My determination ended in one large swoop. I s-l-o-w-l-y walked back to the house and porch and lowered myself into my anti-gravity lounge chair I found at Sam’s Club two summers ago. The pain seemed to engulf my very being. My brain cried out that I did this to myself and I consciously know this. I do not like feeling like this, but honestly, life still needs to happen and things still need to be done and I would feel pain even sitting in a chair. I cannot complain because I chose to do these things today. I am working on my countenance (body language, facial expressions), too, trying to keep things smiley and positive!

Soon it was dinner time and we grilled burgers, I showered and settled into a quiet evening trying not to move too much…The rain continued. My head still felt groggy and my joints were still screaming at me. Were the clean windows and pruned flower beds worth all that I went through today? Well, this IS a blog about the day in the life of a Fibro Momma. Was this a typical day? Yes, it was. Because no matter what I choose to do, there is always a level of pain that goes with it. Some days I can barely lift the coffee pot to pour the water in to make the coffee. Some days I HAVE to rest most of the day. But I do try to do at least one thing each day to be productive, even if it is only reading aloud to my girls. And even THAT makes for a very…productive…day!

Living Daily with Chronic Invisible Illness

The Weather and Fibromyalgia

The weather can be a real drag when you suffer from Fibromyalgia. Sunny days can cause rashes and even cause you to have a flare! Rainy days can cause a flare as well. What to do???

I have begun applying sunscreen each day as part of my morning routine. I use Neutrogena Beach Defense Water + Sun Protection 70 spf. It has Avobenzone 3%, Homosalate 10%, Octisalate 5%, Octocrylene 4.5% and Oxybenzone 4 % which offer broad spectrum coverage from both UVA and UVB rays. This is important for those who develop sun rashes due to Fibro and Lupus. I am one of those blessed people!

I have also invested in a few broad-rimmed hats to keep those sun beams from hitting my face and neck. I found one at Cracker Barrel Store & Restaurant this past spring and the I found two more at a Dollar General Store. (I happened upon them quite by accident as I was running in to grab something else!) I ended up buying two of them because they were-

1.) big and floppy

and

2.) only $6.00 each!!

I must say they are my favorite hats so far!

I am also thrilled at the clothing styles of today!!! Gone is the tight-fitting top and dress!

**Finally!! Yeah!!!**

Fibros know that loose-fitting clothing is a better choice for sensitive skin irritations! The peasant top is my new favorite. Long sleeves or at least three-quartered sleeves are a skin saver, even in summer! Yes. You read correctly. S-u-m-m-e-r. Those long sleeves are a must in summer and the peasant top offers loose-fitting, long sleeves that actually keep you cool!! I invested in several of them-some from Cracker Barrel (I love that store!) and some from Kohl’s and one I found on clearance at Wal-Mart!

Regardless of where you shop, just make sure your arms are covered and you stay cool! (That sounds like an oxymoron…stay covered and stay cool…haha)

….and don’t forget the sunscreen! All these precautions may not prevent a flare, but they may help minimize them.

Happy August-stay covered and cool!

 

Living Daily with Chronic Invisible Illness, Living Daily with Fibromyalgia

Fibromyalgia and Myofascial Massage

If you suffer from Fibromyalgia, then Myofascial Massage may work for you! Yesterday was my first day of PT for this. Before, I had tried water therapy via a pool where they had me walking and doing various legs exercises.  While in the pool, it was not so bad, but walking out….that was a different story! I felt the pains deep in my joints for days and days!

I saw my doctor the other day and told him that the pool PT only exacerbated my Fibro making it more cumbersome to get through my days and week. “Was there anything else we could try to help me GET THROUGH a week instead of making it worse???” I cried!

The doctor said that Fibromyalgia is one of those tricky conditions where what works for one person, may not work for another. He was willing to exhaust another option to help me find relief. So, heat therapy, strengthening my range of motion in my shoulders and myofascial massage were then ordered 2x weekly for the next six weeks. Well, I thought, I made it through the last six weeks of the pool stuff….however, it was at a real cost to my body. It made me feel worse (is that possible…???) for days and I never felt like it helped.

But I did try. That counts for something.

Next round of therapy-bring it on!

I arrived at 8:45am to Physical Therapy with renewed hope. Heated, wet towels were placed over each shoulder for ten minutes while I rested and tried to relax. When the time was up, the therapist came in and began to explain that she was going to run the muscular part over my shoulders and down into my shoulder blades.  Now, my pain has a trigger spot there that if hit in just the right way will send me to the sky! I tried to keep relaxed while she began. She used a long, flat, metal tool called a Graston tool. It felt like she was scrapping my muscle and skin (in a good way!). Sometimes it was intense but it truly felt like a good pain.  She said some Petechiae were beginning to show. This was a sign I was having trouble spots and that I was reacting to the treatment in a normal way.  When these tight areas are manipulated, they begin to break apart causing this rash.

She took this picture to show me what was happening. Wow, that looked pretty bad! However, I felt like my body was relaxing as she worked on each side of my spine. It was the first time in years I felt a little bit of relief. That was something…*sigh*

Petechiae spots on my shoulder

I was told to drink plenty of water for the next couple hours to rid my body of the toxins being released from the nodules and then we discussed improving my range of motion. I have noticed over the past year that lifting my arms over my head has become more and more cumbersome. I was taken to a pulley (no weights, no tension) and as my left arm pulled down it raised my right arm up. I had complete control as to how high I raised my arm. I admit the stretch felt rather good. I switched arms and pulled down, then repeated with each arm three times.  She gave me a pulley to use at home, daily.

This morning my shoulder joints are throbbing, but that is not a new symptom for me. Fibros know we run 24-36 hours behind what we do….(be positive, be positive, be positive…)

All in all, my immediate thoughts are that if you can find a therapist trained in the art of Myofascial Massage, it may be worth asking your regular doctor or Rheumatologist about. Perhaps you will be one of those who can find a bit of relief with this method. I am hoping to be one of them!!!  I have another PT scheduled for tomorrow and I am actually looking forward to it!

 

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

**If you found this read helpful, please share this page on your Facebook or become a subscriber by clicking the tabs in the upper left-hand corner and  click subscribe! Thank you!